Awaiting a diagnosis opinions plz

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tracie196868
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Date Joined Jan 2013
Total Posts : 12
   Posted 1/23/2013 11:04 AM (GMT -6)   
Hi all :-) my names Tracie im 44 an awaiting a diagnosis as to wether I may have ms.
I saw a Neuro on 10th Jan in the UK, as my doc referred me due to my syptoms I was getting, ill list afew
Vertigo
Muscle weakness for weeks then other times muscle tightness unable to bend easily
Servere fatigue in body feeling of weakness
Unable to dry my hair as can't hold dryer arm up as it hurts and wants to flip back down
Feel I'll lightheaded, fast pulse, nauseas, over heated after bath causing very weak muscles and very tired washed out feeling but as cool down feel better sometimes still tired but don't feel so heavy.
Unable to walk in straight line vere off to right sometimes crash into things
Lightheaded sometimes wen just sitting aswell as standing, walking
Pins and needles in right arm and hand and left hand fingers for 3 months now but is worse when I bend forward I get a cold rush of pins and needles down my right arm, this when first started was accompanied by weeks of tightness in top of arm which has now gone but pins and needles still there but not as bad
Thought id got bladder infection other week but hadn't
Going toilet more in the night
Pins an needles slight numbness in feet legs
Sometimes short of breath on exertion going upstairs etc
Few more syptoms but not ms related like hives, early menopause I alsi have crohns disease too.

I've had lots of bloods done for vit deficientcys, lymes and lupus and rheumatoid factor but all came back satisfactory so am now waiting for MRI appointment for spinal and brain which shud be in about a month.

Can anyone plz give their opinions on above syptoms and especially the pins abd needles rush off cold down arm when bending forward. Thanks in advance

I have a cousin who lives in Florida with ms but she's alot older than me and her husband is on my fb friends list, I so want to message her and ask her opinion but darnt as I may look like im jumping the gun so to speak and don't want to worry anyone plus my mum thinks im just overworked and she says a few days rest abd I'll be ok. When I told her my bloods were ok her reaction felt like if bloods ok your ok so to speak, I don't find my family much support they ok texting me but don't want to chat on phone to help. And im sure my mum wud think I was being silly if I contacted my cousin to ask her about wether I cud have ms or not.
Sorry for long post thanks

Post Edited (tracie196868) : 1/23/2013 9:09:01 AM (GMT-7)


tracie196868
New Member


Date Joined Jan 2013
Total Posts : 12
   Posted 1/23/2013 4:51 PM (GMT -6)   
Plz anyone? Help me out plz, opinions plz im worrying and feel very isolated at the mo with no one really to air my worries with plz

Gretchen1
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Date Joined Jan 2007
Total Posts : 3571
   Posted 1/23/2013 11:40 PM (GMT -6)   
You certainly have a lot of disturbing symptoms. I hope you get some answers soon. Hopefully it's something more treatable than MS. Best of luck to you.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

manyissues
Regular Member


Date Joined Jan 2013
Total Posts : 59
   Posted 1/24/2013 8:41 AM (GMT -6)   
Tracie, allot of your symptoms sound like mine. I was recently diagnosed with Peripheral Neuropathy. I sure hope you do not have MS. Good luck.
I suffer from herniated disc at l4 l5 S1. lots of bulging disc,bone spurs and DDD in facet joints. Central annular teat at L3/4. Fybro, COPD RCPS . Peripheral Neuropathy. Arthiritis,RLS , Think it all comes from leg accident from 2006. Dropped a 50 lb wooded skid against my leg, was not broken, massive hematoma, then it went from there.

tracie196868
New Member


Date Joined Jan 2013
Total Posts : 12
   Posted 1/24/2013 12:17 PM (GMT -6)   
Hi thanks, im waiting on MRIs of brain an spinal, wud peripheral neuropathy show up on MRI scans or wud I need other test? Thanks
I cud of been bitten by a tick as im around baled hay as I keep guineapigs and have done for many years, also had a dog for 13 years that I use to walk over the fields and have 2 cats so cud be probably lymes but blood test came back neg but if I had been bitten years ago then wud I get a neg or pos result, I also was convinced that my vit levels wud be low as I have crohns but they came back ok too.

Today I've had strange syptoms with head, I feel my reactions are slow an my necks been making slight jerks all day and my type hand fingers slow sluggish and my top jaw feels weird almost tight making swallowing not right nearly chocked on cup tea! Seem to be taking in air same time as swallowing and food and liquids go down wrong hole, I've had those syptoms on an off for last 3 year's.
Also have jelly legs today and short of breath alittle on exertion.
Im worried as the chocking thing is scary and I have to make sure no one id talking to me when im eating or drinking.
My mind is forgetful, I forget what im saying if someone butts in when I talk too and I feel like my brain is on go slow and when im very tired I slur my words and my brain is buzzing an ears and my brain feels like it's going to shut down and I will drop to the floor!
I kno it sounds weird but this is like an extreme tiredness nothing like I've experienced before apart from last 2/3 year's
My feet buzz and are usually cold from below knee down. Thanks

manyissues
Regular Member


Date Joined Jan 2013
Total Posts : 59
   Posted 1/24/2013 2:30 PM (GMT -6)   
No the MRI will not show it. Its a hard one to diagnose. Its usually why your medical history and your symptoms. Nerve testing sometimesdone,neurological exam. Lets just see what your MRI shows.
It sure sounds like your having allot of issues at one time.
I suffer from herniated disc at l4 l5 S1. lots of bulging disc,bone spurs and DDD in facet joints. Central annular teat at L3/4. Fybro, COPD RCPS . Peripheral Neuropathy. Arthiritis,RLS , Think it all comes from leg accident from 2006. Dropped a 50 lb wooded skid against my leg, was not broken, massive hematoma, then it went from there.

tracie196868
New Member


Date Joined Jan 2013
Total Posts : 12
   Posted 1/26/2013 3:24 PM (GMT -6)   
Hi, just update I have date for my MRI scans weds 13th Feb, im bit worried about it and I went to talk to my doc yesterday and to cut long story short she told me the Neurologist thinks I do have ms, so I've been bit tearfull and am hoping he has it wrong.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 1/26/2013 4:21 PM (GMT -6)   
Gosh! You are having to wait a long time!! Try to be patient. Try not to worry too much.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

najeena
New Member


Date Joined Sep 2009
Total Posts : 2
   Posted 1/27/2013 3:07 PM (GMT -6)   
Try not to worry too much, Tracie. I had been in a state of terror before my MS diagnosis, and was actually kind of relieved to know what was going on. I was given anti-depressants as a matter of course and now I feel better about myself and my problems than I have for many years.

peace

najeena

MS, epilepsy, GERD

tracie196868
New Member


Date Joined Jan 2013
Total Posts : 12
   Posted 1/28/2013 4:36 AM (GMT -6)   
Hi thanks :-)
Before my doc said Neuro thinks I have ms I kept worrying that it was, now she has said the Neuro thinks it's ms all I keep saying to myself an everyone is that they must have it wrong and I've been finding reasons for all my syptoms like over work making muscles feel bruised, sleep deprivation making me forgetful etc and my balance, vertigo an tinnitus due to allergies etc.
It all cud be yes? Is this normal to think this way? I know it's not the end of the world if I have ms but I just didn't want anything more with having crohns too.

Luckily in UK I havnt had to wait too long either it will be just over 4 weeks from seeing Neuro to MRI appointment and NHS waiting lists can be long at another hospital I cud of waited up to 8 weeks from seeing Neuro so my waiting time is not bad really. Thanks

jack73572
New Member


Date Joined Feb 2013
Total Posts : 11
   Posted 2/6/2013 7:55 AM (GMT -6)   
Tracie..... I don't know if you have MS, but the symptoms you describe could certainly be caused by MS. It is normal to feel the way you do and it is also normal to go into denial if it is indeed diagnosed as such. my diagnosis came in 1999 and is a clinical diagnosis based on symptoms and dirty MRI's showing plaquing (sp). There is something obviously wrong, and whatever your diagnosis is I advise you to be aggressive in your treatment of it. Keep us posted on your results.

Essay
New Member


Date Joined Nov 2012
Total Posts : 13
   Posted 2/6/2013 3:34 PM (GMT -6)   
Tracie I have prob had MS for 40 years and was only diagnosed last year. It is much better to be diagnosed not matter what your problem is. Your symptoms do sound like MS. If you test negative and continue to have the same problems I would ask to be tested again in 2 years. I was swept under the rug. Even had an MRI that I was told was negative 2 months before I saw a specialist and had a positive scan at another facility. Makes one wonder....

tracie196868
New Member


Date Joined Jan 2013
Total Posts : 12
   Posted 2/19/2013 2:25 PM (GMT -6)   
Thank you all for your replies :-)
I had my MRIs last weds 13th and am waiting for results!, unfortunately I cud be waiting another couple of weeks yet and then be waiting to see Neuro again, it's bit slow in UK on NHS, but I just got to wait which is worse thing, I never suffered with anxiety till now lol :-) thanks

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 2/19/2013 6:53 PM (GMT -6)   
Wow!!!! Things are moving slow!!! I usually get my MRI report in about 3 days. I can take my CD copy just a few minutes after the MRI is complete.

Well, hang on a bit longer. Good luck.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.
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