Scared and need some opinions and thoughts

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GirllyGirl24
New Member


Date Joined Mar 2013
Total Posts : 1
   Posted 3/27/2013 6:16 PM (GMT -6)   
 My husband had an MRI to look at his plumitory gland (sp) to see if there was a tumor and that being why he has low testasrone, well the MRI came back with some lesions, so the doctor sent him for another one, and got the same results. The doctor told us it could possibly be MS and sent us to a Nero doctor. The Nero doc did lots of tests (muscle and eye test in the exam room) and a spinal tap and 9 vials of blood and a urine sample, and asked if my husband has had any symptoms. And he does not, in fact he feels normal, and happy cause he and I had joined a gym together and have been working out and has lost some weight as we have been dieting, so the thought of it being MS is quite shocking. I know that not everyone is the same, and that until we go back to see the Nero doc, nothing is set in stone. But as I look around and reserach I seem to find that besides the lesions (I read in doc report on the computer when he left the room 7 mm leisons? so I asked the nero doc how many and told me it was more then 2 lesions but not alot. whatever that means the nero doc has not seen the  MRI and is going with what our primary doc sent until he gets the MRI results for himself), he has nothing else that would lead to MS, I did take a look at Lyme Diesese since he worked outside for a long time and has had ticks on him before. Also he works in a fiber glass factory, that is loud and he works with the glass (though he wears a mask when required and needed) He is 34years old, and besides having 'gerd' (which they aren't to sure about cause he changed to lactous free milk and takes Nexium and hasn't had any issues with that since the start of his own changes) I don't want to think the worse, and I can't help but do so, I have cried all day before finding this site, I just don't want to lose him, he is my everything, and our childrens everything. If anyone can give me their thoughts, opinions or anything that can help, I would be very greatful. Thank You.

Rickybaby
New Member


Date Joined Apr 2013
Total Posts : 2
   Posted 4/10/2013 2:04 PM (GMT -6)   
the spinal tap will confirm it if is. I pray is not

opugirl
Forum Moderator


Date Joined Nov 2012
Total Posts : 3922
   Posted 4/10/2013 2:10 PM (GMT -6)   
A lot of people with lyme have been shown to have the MS antigen that they test for which disipates after treatment (for some). My lyme came back negative...only through a certain lab did mine come back +. My docs were trying to puch the MS diagnosis. It is worth checking out anyway!

els
Veteran Member


Date Joined Oct 2005
Total Posts : 4031
   Posted 4/13/2013 3:34 PM (GMT -6)   
Hi GirllyGirl24, I'm glad you found HW; I hope you were able to find some answers and get more replies to your post.
 
I've had MS for 12 yrs. I was diagnosed when I was 27 & newly married for 2 yrs. I was fortunate in my Mother being proactive in my care, she is a cardiac nurse. From onset of major symptoms to my final diagnosis it took 6 weeks. This is not typical for most people who wait years before they know for sure what they are dealing with. My MRI showed a lesion approx. the size of a golf ball. Tumor or MS were the two indications with my MRI. I had a brain biopsy three weeks later as well as lumbar puncture, EEG, ECG, Evoked Potential Vision Exams as well as blood tests.  My LP results came first stating spinal fluid was positive & low for whatever reason. The biopsy was sent to the Mayo Clinic & the hospital lab which both came back saying my lesion was MS.
 
Based on the biopsy results & lumbar puncture I received a definite diagnosis of Multiple Sclerosis. Most people wait for years before getting a diagnosis of MS. Even if they present with symptoms of MS. It is very sad and difficult illness to deal with.
 
Your husband is blessed to have a wonderful wife looking for answers, asking questions, being proactive in his medical care. You stated his MRI showed two lesions but he isn't experiencing any MS symptoms right? I ask this because I had some slight symptoms starting a year or more before I had my major onset which occurred over two days time. I started having major headaches which I thought was stress, neck pain & stiffness and one time I feel down the stairs in my house as my right foot went numb. I had the numbness on and off but really didn't pay that much attention to it. I was overweight, had a demanding job, working all kinds of crazy hours so I figured these were the reason. I was at work when I noticed the numbness spreading slowly up my right leg to my knee. I thought I had a back problem like a slipped disk so I once again pushed it to the back of my mind. I woke up the next morning with total right side numbness, I couldn't use my right arm, my fingers were all curled in, I could hardly talk or walk well. I thought I had a stroke as that is exactly how it looked. In a panic I called my Mom who talked to my primary care doctor & he was able to get me into MRI that morning. We had the results the next day. With this illness it is different for everyone so it's difficult to pinpoint exact symptoms that are from MS.
 
Having a strong, positive support system is critical with any illness. It's scary and life changing. I hope you are able to get some answers here but you will find tons of support for you both. Please keep posting & let us know how things progress.
Take care
 
 
 
 
 
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