Hi I am Cryssy and I have posted on some of the other forums but I am newly dx with MS.
Over the years, I am 31 by the way, I have been dx bipolar, chronic pain, chronic migraines, and fibromyalgia. I had never looked at MS as a possibility. Slowly in the last year a lot of weird things started happening off and on. I had already had a neuro for the headaches so I asked him about MS in November. He said no way could that be it and it's just your headaches and fibro causing your symptoms. I had my tounsils out and polyps removed from my sinuses in December and after my ENT listened to my complaints of muscle twitching, muscle cramps, terrible fatigue, balance issues, blurry vision, double vision, arms and hands numbness, legs and feet numbness, memory issues, bladder and bowel weakness, and so much more he decided himself to send me for a brain MRI and to see a immunologist. I did all this and of course I had spots in my brain. My immunology blood work up wasn't all that great either so she sent me to an MS specialist. Right away the MS specialist said yes it MS but we need to do a complete MRI workup and a spinal tap. The testing was over a month later. She did find out that my liver enzymes are super high. She said for me to start on rebif right away but of course I declined. I ended up in the ER a few weeks later with the headache of my life and pain in my right leg and I was dragging it. So since I was already admitted to the hospital as a patient they went ahead and did the MRIs and the spinal tap. UGH!!! That was a horrible week in the hospital. I honestly think the doctors (because of course the MS specialist I was seeing couldn't be bothered to see me and I got the neuro that was on hospital duty that week. They finally released me after 7 days and sent me home with a pain med script. They told me my spinal tap results would be ready in a week. This MS specialist calls and tells me my spinal tap was fine.
So then I panic! then what is wrong with me. I made another appointment with a new neuro for another opinion. He tells me my spinal tap says indicative to MS findings. I was so mad and why did she lie to me. So I am officially diagnosed now.
Mother of three beautiful children ages 12, 7 & 6 and the wife of a great husband who really doesn't understand chronic pain.
Sufferer of Bipolar I, Chronic Pain, Migraines, anxiety and just diagnosed with MS.