Its been so long, scared!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined May 2013
Total Posts : 1
   Posted 5/15/2013 7:35 AM (GMT -6)   

Im new at this, not ms but to forums like these. Im looking for a little support or anything that will help me see the light.

I was diagnosed about 10 years ago. ON led to my diaganosis of relapse remitting ms. Since then I have had a few relapses of numbness in my legs mostly. I had one in my face in September that hurt a lot but went away relatively quickly. My Neuro suggested I switch med from Copaxone to Gelinya.

I decided not to because I was trying to have a baby. He told me he hoped that it would be sooner than later that I do, and said nothing else.

In January I started getting numbness in my left hand and went for treatment of solumedrol. Didnt think much of it because I could still use my right hand (Im right handed). But then I started feeling the numbness in my right but I could still use it. I went on a week long trip for work (I know bad idea - but I have always been able to function despite my relapses). My right hand got worse and was unable to get treatment till the following week. It got bad - my right hand was a claw. I was also having balance issues, and my left arm was "wonky", and got the ms hug. By mid March it started to heal. My left hand was relatively normal and I was able to write again with my right. I no longer had the hug and balance issues. I tried going back to work in April but the stress of the job (no one knows) made me relapse again. More solumedrol and the function is returning but they are still numb and get worse with heat. My forearm also hurts A LOT. And the pain meds dont seem to work.

I finally switched to Gelinya 2 weeks ago, sad that the chances of me having a child in this lifetime is not going to happen.

My question is this. Being diagnosed 10 years ago does that mean that I will not recover from this relapse back to baseline? Ive always recovered 100%. Its been 4 months since the start. I am freaking out because I am normally very active (running, swimming, surfing ect). How long can it last, when do I give up?

Also heat never affected me but now seems to affect the numbness in my hand. Is this part of the relapse? Can this go away?

Im trying everything from diet to supplements to switching to Gelinya.

I still have not gone back to work because Im worried of not being able to function properly. Being a high school teacher can be demanding and stressful.

I know everyone is different but some words of wisdom or experiences can help.

Yours truly,

Going Nuts

Post Edited (Axelle) : 5/15/2013 7:46:51 AM (GMT-6)

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, June 19, 2018 8:46 AM (GMT -6)
There are a total of 2,973,181 posts in 326,066 threads.
View Active Threads

Who's Online
This forum has 160947 registered members. Please welcome our newest member, Mysti Sherwood.
444 Guest(s), 10 Registered Member(s) are currently online.  Details
Broken0ne, PAPUN, Bull101, Stevo68, Sherrine, Tudpock18, CAdogsRus, Kay Tee, straydog, iPoop