MS-Lyme Disease Link???

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Regular Member

Date Joined Jun 2013
Total Posts : 26
   Posted 7/10/2013 10:37 PM (GMT -6)   

I have Lyme Disease & have recently joined that forum. I've also read a couple of reports/studies in the past few days that suggest Lyme &
MS may be caused by tick bites. In Lyme, it's been proven; but the report that a graph of the incidence of Lyme & MS, by region & month, is virtually identical. Plus, just reading a number of posts here, I'm struck by the similarity of symptoms. It might be worthwhile to read some of the Lyme forum posts periodically & see what you think. There is also speculation that ALS may have the same etiology. Anyway, we are all in this together, whether it's MS, Lyme, Lupus, heart disease, depression, Lupus, GERD, cancer, etc. As Jim Valvano (NC State B'ball coach who was dying from cancer) said many years ago: 'Don't give up... don't give in.'

Regular Member

Date Joined Aug 2013
Total Posts : 332
   Posted 8/14/2013 5:12 PM (GMT -6)   
I am in this boat. My doctor tested for lyme in September 2012 after i had a heavy feeling in my legs and sporadic blurred vision. The WB came back with bands 23 and 41, but considered negative overall. In December I had major symptoms on complete sensory numbness from chest down. They did the MRIs and found lesions on brain and both spines. Off to a neuro i went and was dx with MS. I truly believe I have Lyme since it is what the doctor first suspected and tested for. If I had no chance of having Lyme, nothing would have shown up on the WB test, but something did. Just not enough for the CDC to give me a positive rating. I am currently looking for a reputable LLMD. I plan to start being treated for MS by using Copaxone until I find what i seek. I know I can get the Igenex test, but that wont prove anything unless I find a doctor to treat chronic Lyme. I have not taken any MS meds yet, and it has been a year. But the second set of MRIs in July showed more lesions. So now its a time game. If treating for MS will help prevent lesions/symptoms, I will do that for the time being.

cleo springs
Regular Member

Date Joined Aug 2009
Total Posts : 76
   Posted 8/31/2013 3:27 PM (GMT -6)   
Hi, Brian, I didn't watch the video you posted a link to, but thought I'd post something on the topic. I saw your thread when I was on the main menu going to the lyme forum.
I have recently been reading about toxoplasmosis and mycoplasmas.
Both can be carried in the human body w/o causing any known symptoms. However, it seems that they can become harmful in a person who becomes ill with something else, and both of those organisms can be debilitating and persistent but not often dx'd.
There is a lot of overlap in symptoms of lyme dz, toxoplasmosis, mycoplasmosis, MS, fibromyalgia, as I'm sure that most folks who come to this forum are aware of. Some of the research I read (online) seem to link the toxo and/or myco infection to persistent symptoms leading to diagnoses of MS, lyme, etc.
I recently had a dr order bloodwork to rule out both organisms. I had never heard of mycoplasmas before, and thought that toxoplasmosis was only a threat to a fetus (causing birth defects). This led me to read more about them.
Also: I heard a neurologist or neurosurgeon speak about how lyme and MS are often confused, based on the appearance of brain structures. Lyme causes a type of neuron to stop transmitting signals. I think it was ogliodendrites or olio-something. Anyway, those neurons (oglio- or olio-) are sort of shaped like plaque formations in the brain, and when they stop transmitting signals, on an MRI they appear very much like those plaques which are associated with MS, thus leading to the diagnosis.
Thanks for letting me butt in!
Diagnosed/started trmt in 2009 for Lyme, bartonella, babesia. Continuing trmt into 2012 for mainly babesiosis symptoms.
2012 was: recurring relapse/remission of babesiosis symptoms.
2013:New dr.; positive blood test for mycoplasma. Will begin different course of treatment. Hopeful for the first time in a LONG time!
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