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Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 8/8/2013 9:02 PM (GMT -6)   
Well after getting bloodwork done and an mri, my new neurologist is now sending out for an Spinal Tap and I could use any info, I did read some, but what should I expect and will bloodwork be taken as well? Something showed up on my brain mri but I have not been to see the doctor and she seems very concerned. only thing about the bloodwork was it was lowD and I do not understand I'm supplementing with 50,000 iu of D twice a month and I only forgot once this year and both times blood has been done it has been low???...I have had bad emg's (the first neurologist to do the emg's said I had the nerve of an 80 yr old person and I was only 46 when that was done)...This neurologist did mention inflammation, don't know why inflammation keeps showing up..I go back to she her on the 22 August, Something is going on with me and I hope this spinal tap can pinpoint what...

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 8/9/2013 11:36 AM (GMT -6)   
I'm just real nervous about this test(Spinal Tap) and wondered if anyone here has had it done? My Neurologists suspects something is going on and I just hope it's not MS...but it would explain a lot of what I'm going thru....I had an aunt die at a young age with stuff I'm going thru...
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* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Bad Mojo
Regular Member


Date Joined Aug 2010
Total Posts : 70
   Posted 8/10/2013 5:43 AM (GMT -6)   
Spinal taps (or lumbar procedures as they are sometimes called) are fairly simple.  Mine was done without using any anesthesia.  A very thin needle is used to draw a sample of fluid from your spine.  Although not too painful, it was a little uncomfortable.  It also takes a few days to get the results.  The results may not confirm MS, but can help rule it out. 

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 8/10/2013 9:16 AM (GMT -6)   
Thank you
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 8/16/2013 7:20 AM (GMT -6)   
August 29th I go for the spinal tap (lumbar puncture) about 3 hours at the hospital before the procedure then 4 hours lying flat afterwards...

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 8/16/2013 9:41 AM (GMT -6)   
Chart,

Best of luck to you. I hope you get some answers from this. They are none to quick to do this procedure! It's too bad for the long wait. The results will take about a week. They will take blood at the same time.

I was only required to lie down for an hour then I went on home. I did lie down at home for the rest of the day. I took it easy and drank lots of fluids. I didn't get the infamous headache. I hope all goes well for you.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 8/24/2013 8:23 AM (GMT -6)   
Had to go to my pcp because of the lying flat for 4 hours after, I'll need either Xopenex or albuterol inhaler treatments...can't lie flat without coughing...got a copy of mri results and it show "chari" 5-6mm...that has me a little worried....

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 9/6/2013 11:27 PM (GMT -6)   
You said you were seeing the neurologist on August 22. What did he/she say? Did this doctor discuss the results of your MRI?
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 9/11/2013 5:52 PM (GMT -6)   
Had Spinal Tap on 29 August, went down hill from there as first blood patch was on Sept 2, and second blood patch was on Sept. 6, so been out of it...Got results today not MS, but lots of lows and highs on Bloodwork...
Question CSF Mono was a 12% and a asterisk was by it but do not know what that means???Normal is supposed to be (16-56) % and Beta Gobulin was 20.9 % and those were the only thing from the spinal fuilds to stand out...
Bloodwork Low's on WBC, HGB, MCHC, NEUT% and NEUT # and again low D's which I'm supplementing for over 6 years now third time D has been low in a row...
High Blood levels are: RDW, MPV and LYMP
Currently, very dizzy, some shortness of breath, some nose bleeding, also posted this in the CP forums
Neuro suspects Auto Immunne(SP?) and next steps are neck MRI's and more bloodwork, waiting for now on bloodwork as last blood patch blew out 4 veins and very bruised...then maybe a muscle biopsy...
and y'all know I'm so tired of all this...Help...
But, glad it's not MS...and feel for all those that do have MS and how they have to go thru all this...Dang it they need better testing!
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 9/11/2013 6:52 PM (GMT -6)   
I'm very glad it isn't MS. Hopefully you will get answers soon.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

nannie710
New Member


Date Joined Oct 2013
Total Posts : 3
   Posted 10/16/2013 9:29 AM (GMT -6)   
With the spinal tap I tested positive on two rings and my MRI shows I have lesions, however I still have not been diagnosed. I do however have all the other symptoms.
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