Not diagnosed yet but possible per Nuerosurgeon

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Mom2Type1JD
Regular Member


Date Joined Sep 2011
Total Posts : 89
   Posted 9/18/2013 7:50 PM (GMT -6)   
This is about my husband. Hes 49 never really had health problems. about 3 weeks ago went for an MRI it came back possible Chiari<< spelling sorry. So the Dr today told him there was no way his symptoms are related to the herniated brain tonsil he was probably born with and only on 1 side. He told him he thought either MS or Parkinson's. His symptoms are Losses balance, trips over things, Blurry vision sometimes, hand and arms going numb, dizziness, and now we've added a new symptom I just learned of he says he has trouble swallowing liquid its been going on for about 2 months he says its like he forgets how to swallow. Towards the evening he almost lethargic, like hes drugged but hes not. I don't even know him anymore. Hes was also low in Vitamin D when he had labs done. Now he is having to go for another MRI to its called and MR Cervical Spine W/O contrast..

Him loosing balance to me is severe its all the time hes a big guy I don't know how I would get him off the floor.
We aren't really getting answers from the Doctors and its been gradually getting worse. Any input or thought would be greatly appreciated.

sueg
Veteran Member


Date Joined Aug 2013
Total Posts : 718
   Posted 9/29/2013 8:46 PM (GMT -6)   
I am having a lot of the same medical problems as your husband, plus a few extra. I am going to see my doctor again and request more testing. I think that from what I have read, it can take awhile to diagnose some of these diseases.

Go to a different doc or an urgent care clinic, tell them how these serious concerns are affecting his life. And be firm- let them know how much this has limited everything for him and you. I am going to see my specialist again, and get some answers from him or another specialist--just making this decision gives me a good feeling to know I am trying my best to get better!
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