Please describe your MS fatigue? How often? How strong?

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Veteran Member

Date Joined Aug 2013
Total Posts : 718
   Posted 10/10/2013 4:46 PM (GMT -6)   
I was reading online about MS fatigue--it is called Lassitude. And it has a very clear description on the MS Society website. Would you tell me about yours and other symptoms also?
And have any of you been wrongly diagnosed with MS only to have Lyme? (from Spinal Tap results)

Forum Moderator

Date Joined Jan 2007
Total Posts : 3553
   Posted 10/10/2013 6:26 PM (GMT -6)   
I am lucky. I don't suffer from fatigue very much. I am able to work full time.

My symptoms are: poor balance, chronic vertigo, mild nystagmus, numbness in my lower legs/feet, mild foot drop on the left side. My symptoms do not come and go. They came and stayed.

I was tested with the western blot. I was also tested via Igenex paying out of pocket. I tested negative.

There will be people on here shortly to tell you that MS is just Lyme disease misdiagnosed. You will have to do your own research and form your own opinion.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Motor City John
New Member

Date Joined Oct 2013
Total Posts : 1
   Posted 10/13/2013 9:10 AM (GMT -6)   
....the ms fatigue is the most frustrating (to me ) of being a MS'er..

Unless you are a MS cannot concieve what it is all about..

I take drug Provigil twice a day...helps a bit...but...not like old days

..;this is described by one of my favorite sayings...

Life is not far...John

New Member

Date Joined Oct 2013
Total Posts : 1
   Posted 10/15/2013 11:18 AM (GMT -6)   
My diagnoses is still fairly new. I have been tired ever since I was released from the hospital. I am so used to working that I do not know what to do with myself. I can barely walk I have no feeling in my legs, basically from the waste down I have no feeeling. The meds that they have me on I do not feel are working very well. I feel helpless all the time I have a two year old daughter I have to take care of I feel like I can not do it she is so full of energy.
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