MS, Hashimotos or Something Else?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Nov 2013
Total Posts : 1
   Posted 11/3/2013 12:35 PM (GMT -6)   
I am working to confirm that I really need to have an invasive spinal tab to rule out MS.  I have had lots of tests completed – and am hopeful we already have the answers to my sickness but the pieces to the puzzle hasn’t been put together for a diagnosis.   I am single mother of three and work full-time– and I am going through my sick leave at a fairly quick rate with no real diagnosis for FMLA.  

I am pretty sure I have an auto-immune issue – relating to my Hashimotos.

Can someone give me some direction on this?

Current Symptoms:

Double Vision
Square Wave Jerks
Bradycardia (new in the last 12 months and I am not an athelete)
Hair Loss
Numbness/reduced sensations in Tongue, feet, neck
Difficulty Swallowing (Comes and goes)
Brain fog/speech issues (come and goes)
Chest burning, (comes and goes)
Sleeping issues
Waking up with an internal Tremor that decreases with activity
Headaches/Migraines (off/on my whole life) that increase in pain after eating sugar
Frequent Urination/Urgency (off/on for several years)
Anxiety issues (several panic attacks in the last 9 months - trigger was dizziness while driving - higher speeds make it worse)
Thyroid Function changes (high TSH's coincided with hospital visits)

Health History -


2001 Desert Storm – Gulf region from Feb to September of 2001

1995 Birth of Son (C-Section)

1996 Hypothyroid/Hashimotos Diagnosis (symptom – loss of hair)

1997 Birth of Daughter (she was diagnosed with Hypothyroid at the age of 14) (C-Section)

2005 Birth of Daughter, had gestational diabetes during later part of pregnancy (she had grand mal seizures (outgrown) and ADHD, being tested for autism spectrum) (C-Section)

2010 Enlarged lymph nodes, treated with antibiotics (series of CT scans on record)

2012 October, had injections of botox and Restylane in eyebrow area

2013, January, chest burning –
Abnormal ECG - referred to cardiologist
            TSH - 12 (after it had been relatively stable (around 1) for years… )

2013, February, ended up in the cardiac for 3 days for observation in cardiac unit for low heart rate and PB (went into the 30’s at night)
            Calcium and enzymes were normal so they released me; blamed thyroid

2013, March through August, Thyroid numbers went back to normal but had off and on issues with:
1. Fatigue/sleeping
2. Dizziness
3. Vision
4. Bradycardia (Chest burning )

2013 June – Both teenagers had mono

2013 August – Wore a heart monitor for the month (Dr. Marillo) confirmed a lower heart rate and PVC's

2013 September – Cardiologist prescribed Midrodine, took two times, one per day - energy shot up but created brain fog and coordination issues; stopped taking on third day - explained the reaction to the medicine and they told me just to increase my sodium intake.  I used generous amount of sodium (with Iodine), started have episodes of confusion, tailspinned until I ended up in the hospital.  

2013, September 30th, episodes of chest pains, muscular weakness, dizziness and disorientation, admitted into  Hospital to rule out stroke.  Results of testing:
1. Normal CT SCAN of Brain and Neck
2. Normal MRI of Brain (without Contrast)
3. Normal Scan of Heart
4. High TSH
5. High Cholesterol (203; Currently untreated)
HDL 40 - 59 MG/DL 51
CHOLESTEROL 110 - 200 MG/DL 203

6. Low Potassium
POTASSIUM 3.5 - 5.5 MMOL/L 3.4
CHLORIDE 98 - 110 MMOL/L 97

7. Elevated Neutrophils
8. Elevated White Blood Count
WBC x 10^3 4.0 - 11.0 K/uL 12.0

9. Low Lymphocytes
LYMPHOCYTES 27 - 45 % 24

New Test Results Issues:
Low IGA Quant (Score 70, range 91-414)
Low Vitamin D (Score 31.4; VITAMIN D, 25 HYDROXY Lab Range: 32.0 - 100.0 NG/ML)
Cortisol (MCG/DL 17.4 – what is the normal range?)
ACETYLCHOLINE RECEP BLOCK AB (Score 22, what is the normal range?)

2013 October
1. Normal MRI of Spine/ Neck (evidence of age appropriate arthritis)

Family History:
Father – Died at 57 from Heart Disease (smoker)
Mother – Surviving – heart attack at 41 (smoker) and deep vein thrombosis issues in her legs

Maternal Grandmother – Diabetes, Congestive Heart Failure
Maternal Grandfather – Hodgkin’s Lymphoma and Kidney Failure (dialysis patient his last 10 years)
Paternal Grandmother – Cancer and Alzheimer’s
Paternal Grandfather – died in 40’s from heart disease

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 11/3/2013 8:02 PM (GMT -6)   
It's your body. Don't do the lumbar puncture if you feel it is too invasive. It is certainly not a fun test. It was a helpful test in securing my diagnosis.

There are other tests. Have you had a thorough neurological exam of your reflexes and responses? Mine indicated a neurological issue right away. Also, look into the evoked potential test. It's much less invasive.

Certainly your symptoms can be attributed to MS, however many diseases have symptom shared with MS.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, September 22, 2018 2:20 AM (GMT -6)
There are a total of 3,005,630 posts in 329,243 threads.
View Active Threads

Who's Online
This forum has 161788 registered members. Please welcome our newest member, Nederfield44.
231 Guest(s), 0 Registered Member(s) are currently online.  Details