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Veteran Member

Date Joined Aug 2013
Total Posts : 718
   Posted 12/21/2013 9:11 PM (GMT -6)   
When we come onto these forums we have a lot of questions. So if instead of only asking stuff about
MS we ask about Lyme we should not feel as if we are making a huge mistake. We are all learning and
are not as far along as some of you.

So please be patient with us if we suggest that all of these signs of illness might be something else other than MS...


ppm guy
Veteran Member

Date Joined Apr 2010
Total Posts : 1224
   Posted 12/22/2013 1:22 PM (GMT -6)   
diagnosing Ms is quite often difficult and time consuming. many health issues can present sx similar to ms, lyme included. your neuro will keep ordering tests and imaging to get you a firm diagnosis. i remember my early days of my diagnostic phase. the hope that it was anything but ms. you ask good questions, and i really like your eagerness to learn.

Veteran Member

Date Joined Aug 2013
Total Posts : 718
   Posted 12/25/2013 12:46 AM (GMT -6)   
What was the path to an answer like for you and how long did it take? Did you start off by having RRMS?
Did your doctor suspect any other illness?

Thanks for sharing....

ppm guy
Veteran Member

Date Joined Apr 2010
Total Posts : 1224
   Posted 12/31/2013 1:28 PM (GMT -6)   
i was dx 20 years ago with PPMS. the neuro never stopped his diagnostic phase for ms. there are no definitive tests. no , my dr always was 98% sure it was ms. he did tests to rule out other possibility. also treatments for ms have little to no effect on ppms. my neuro did MRIs from from front of the brain down to the lumbar spine. my biggest lesions are in the thoracic spine. you only hear about lyme and fibro on this forum.

Forum Moderator

Date Joined Apr 2005
Total Posts : 17891
   Posted 12/31/2013 3:22 PM (GMT -6)   
Sue, that's what is so wonderful about HealingWell! We have 33 different forums so you can get the very best advice for 33 different illnesses. Each of these forums have moderators that are living with the illness of the forum they moderate. This is why, if you have questions about something other than MS, you need to go to the forum that discusses another this case Lyme disease. The members here know more about MS and we are fortunate that we have some members, like Gretchen, who are able to answer MS questions knowledgeably. We need to keep this an MS forum.

I'm a fibro mod and am here to help out temporarily. But, if you went into the fibro forum and asked questions about MS you would get very little response and would be directed to the MS forum. That's where you would get the best answers. See what I mean? No one should expect to get knowledgeable answers to several illness from one forum.

I realize you are still searching but you will find the best answers for various illnesses in the proper forums. I do hope you get a diagnosis from a good doctor soon. Not knowing what is going on is so difficult. I hope you feel better soon.


Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Veteran Member

Date Joined Jul 2012
Total Posts : 672
   Posted 1/1/2014 5:50 PM (GMT -6)   
Sue, I am so glad you are asking these questions. I saw your post on the Lyme forum. It doesn't hurt to do the research. My husband Toby was diagnosed with ALS over two years ago and if I didn't do the research and had him tested through the Lyme reputable lab, Igenex, he could very well be gone now. We have to be advocates for our own health. Hope to hear from you again on the Lyme forum. There are some very knowledgeable and supportive people on the site.
"Facts do not cease to exist because they are ignored" Aldous Huxley

Husband, Toby, diagnosed with ALS summer of 2012. Tested positive for Lyme Spring 2013 - Igenex Lab. Treatments used: Rife, Erchonia Laser, Acupuncture, Antibiotic - Doxyclycline, Herbal Rememdies - Japanese Knotweed (powder form), Cat's Claw, Detoxifying - Ionic Foot Baths.

Elite Member

Date Joined Apr 2007
Total Posts : 32602
   Posted 1/1/2014 8:52 PM (GMT -6)   
Familiarizing yourself with MS mimics and the ways in which they compare to MS can demystify much of the diagnostic process. Sometimes, the process of elimination is the only way to a MS diagnosis. Therefore, the more you know about MS mimics, the quicker you and your doctor can eliminate them as possibilities. Today, with MS specialists advocating early, aggressive treatment, the sooner a MS diagnosis can be confirmed, the better.
If you are diagnosed with MS, you want to be sure that the diagnosis is correct; certainly, other diseases can look like MS, but the treatments are not the same.
While MS may have many mimics, a neurologist can usually make a correct diagnosis early in the disease by taking a careful history, doing a complete neurological exam, looking at the MRI, and sometimes, evaluating the spinal fluid; if you are concerned about your diagnosis, you can discuss your concerns with your neurologist and possibly get referred for a second opinion from a MS expert at a comprehensive MS center. The Multiple Sclerosis Foundation can help you locate a MS center in your area.
I wish you the best and hope you find the forum that best meets your needs.
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.

"She Stood in the Storm & When the Wind Did Not Blow Her Away, She Adjusted Her Sails."
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