With all due respect:
My feeling is that many people post on your forums because diseases like MS, Lyme and Fibro require a very complex differential diagnosis...which is difficult and confusing for the patient and doctor to navigate...so people come to the boards to gather, synthesize, compare, and clarify this varied information, and would also like a "safe place" to do so.
Consider this recent post on your forum from someone with a nebulous MS diagnosis:
"When we come onto these forums we have a lot of questions. So if instead of only asking stuff about MS we ask about Lyme we should not feel as if we are making a huge mistake. We are all learning and are not as far along a some of you.
So please be patient with us if we suggest that all of these signs of illness might be something else other than MS...
Also, the thread I originally responded to ("What Else Causes Demyelination"), did not include Lyme as a possible cause on the list posted: https://www.healingwell.com/community/default.aspx?f=32&m=2911396
Most importantly, the reason I originally responded to the thread was to offer information on mHBOT (mild hyperbaric), which is a valuable treatment for both MS and Lyme.
With that, I will, of course, respect your wishes to refrain from further posts on your forum if that is the consensus of your members...
Post Edited (phoiph) : 12/30/2013 10:01:31 AM (GMT-7)