How effective are current MS treatments in slowing progression?

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Akkami
Regular Member


Date Joined Nov 2013
Total Posts : 340
   Posted 2/12/2014 8:37 PM (GMT -6)   

Hello,

 

I am currently in diagnosis limbo with signs pointing more towards MS than anything else currently. I was just wondering how effective current MS treatment realty is? I know there is no cure and everyone is different… It’s hard to know when doctors are being honest or trying to make you feel better… Anything you could share would be greatly appreciated.

 

Thanks


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 2/13/2014 10:00 PM (GMT -6)   
Hi Akkami,

Like MS itself, med efficacy can be as varied as the disease. Most of the mainstream meds tout a 40% reduction or slowdown in progression. For me, it's been better than that.

Most of the current therapies are injectables. There are a couple newer oral meds. Some have very difficult side effects. Upon diagnosis, your doctor will discuss med options. And of course you can opt to not take a med therapy. Some choose alternative treatments.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Akkami
Regular Member


Date Joined Nov 2013
Total Posts : 340
   Posted 2/13/2014 11:36 PM (GMT -6)   
Thank You for your response. I appreciate it.

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1225
   Posted 2/16/2014 3:16 PM (GMT -6)   
if ms drugs could slow the progression of the disease, they would be approved for progressive forms of ms. but that is not the case. DMDs are rxed for RRMS. the rates of success are for reduction of flares. and of course, exacerbations are at times followed by residual disability. so i would say yes for RRMS.

Progressive forms respond best to symptomatic meds, appliances, and anti inflamatory txs.

sueg
Veteran Member


Date Joined Aug 2013
Total Posts : 718
   Posted 2/19/2014 10:11 PM (GMT -6)   
I have been seeing a Neurologist for possible MS. My Spinal Tap was negative and my second Brain Scan shows no increase of the demyelin. since October. When I spoke with the nurse 2 days ago she said that I should come back in 6 months or call if any problems.

I am in diagnosis limbo for now and wonder why the doctor does not prescribe any MS meds to slow things down for me if this is MS. I have many s/s and am also seeing a LLMD for testing (first visit today). But I don't want to keep waiting for treatment for MS if that is unwise and foolish.

What would you veterans think?
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