Hi, everyone. I've been bouncing around on a few different forums with questions, and I hate to bother you guys. But I have a question/ symptom/ complaint that relates to MS (well, OK, I have quite a few symptoms that do-- but I'm mostly curious about
one in particular for now).
I am 26, DX with Fibromyalgia when I was about
19 or 20, I am on no medication, have no health insurance. But it has been suggested many times over by doctors (back when I was insured) that I may also have an autoimmune disease on top of the Fibro. Nothing has ever been confirmed because I lost insurance.
My primary care doctor truly felt I was suffering with MS; I had so many neurological symptoms (too many to sit and name right now). An MRI just 3 years ago or so showed no signs of the disease. I never had a spinal tap or anything. Should a spinal tap also have been performed?
Were you DX by MRI and lumbar puncture?
Anyway, one symptom that seems to wax and wane but has never gone away for a few years now is nystagmus, where my eyes jerk back and forth on their own. I have done some research on it and the exact type that I have is Acquired Pendular Horizontal nystagmus, meaning that it just appeared out of nowhere one day/ I have not always had it, and my eyes jerk from side-to-side horizontally (both eyes at the same time).
After my doctor mentioned it, I have also always read that nystagmus itself, especially the exact type I have, is often associated with MS. How many of you experience nystagmus? I would really appreciate some input on this subject.
Also, the oddest thing about
the nystagmus is that it often seems to occur with outside stimuli, such as noises, like when someone
opens a door. Can ANYONE relate to this?
My symptoms, pain and problems seem beyond Fibro, and I agree that they seem autoimmune-related. I'm sick of suffering with no clear answers. I could give more info, if anyone is interested, as to how I have many more neurological-seeming symptoms. But for now, I'm very interested to hear from people who have also experienced nystagmus. Because this is one symptom in particular that never seems to go away, it just waxes and wanes.
Any opinions? Thank you so much! I'll really appreciate your input!