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Xaleah Xailee
Regular Member

Date Joined Dec 2013
Total Posts : 68
   Posted 4/2/2014 2:36 PM (GMT -6)   
First off, Hi everyone.

A little about me. I am 32 years old, married mother of 3. In January I got a diagnosis of Syringomyelia in my T-spine, two focus', one from T3-T5 and the other from T7-T8, they are not very big, just 1.44 mm in diameter. I have not had a mri of my head or c-spine to find out if I have Chiari or any Syrinx's in my c-spine.

Anyway, I have a lot of symptoms that my doctor now thinks may possibly be MS. He has me referred to the Neurologist but I have not had the appointment come yet and he wants an MRI of my brain.

Lately my body has been full of weird symptoms, and to be honest I have had some of these before in the past.

A few weeks ago I fell down the stairs twice within a few days and hurt my back, bruised and stuff. Then a few days after that I lost balance when going to the bathroom and fell and hit my head on the narrow strip of the door. Balance has been an issue for me for some time, getting worst sometimes. Its been happening off an on for a long time, but the past few weeks worst.

I really did not know much about MS, but after finding out that they were going to be looking into it for me, I read a little information.

Symptom wise I definitely have the balance and dizziness portion of it. With regards to my bladder, I have issues peeing, I will begin peeing and then stop, but I still need to pee and I have to push to pee, then I will stop and have to push again, its like my bladder does not empty on its own.

I have really bad memory problems.

Just to include here I also have a diagnosis of Bipolar disorder, got the diagnosis about 2 years ago and it is most likely type 2, I do not loose touch with reality or hallucinate or anything like that, and for the most part my mania is hypomania.

There have been times when I have spoken where it has felt like I was speaking with a mouth full of cotton, and my words came out jumbled and whom ever I was speaking to had no idea what I was saying.

I have had difficulty swallowing, or really what feels like my body has forgotten how to swallow, but this does not happen very often.

Fatigue, is bad at times. Right now it feels like my body has its days and nights mixed up. I am hardly sleeping night time at all. Then At around 8:30 am I force myself to go to sleep and I sleep until 12:30 or sometimes even 2-2:30. Sleep disturbances make me a little nervous because it often is the first sign that I am going into a hypomanic/manic episode so I try to sleep in the morning especially if I have not slept in the night.

I have the electric shock sensation that goes down my T-spine. This was actually what lead to the mri of my t-spine and l-spine and getting my diagnosis of Syringomyelia.

I also have periods of time where I will wake up with both arms tingly, sleeping, pins and needles or just plain heavy feeling. This might happen several times in a day or two and then go away for a week or so and then return.

I have no idea if this could be related or not, but this past week or so I have been having issues with floaters in my eyes and a lot of blurryness like I am looking through a fog.

Have definitely been having pain, Joints are affected, hips and knees and knuckles. Also my back, I have had pain in my back for years, some of which is caused by things in my spine, My L5 is fused to my sacrum so this causes pain in that area because I do not have the movement that I should have there.

As I said I do not have a diagnosis yet, but I just feel like being here and talking may help some with the things I am dealing with. I feel a bit overwhelmed.

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 4/2/2014 8:17 PM (GMT -6)   
Hi there! Welcome to the forum. I'm sorry you find your self searching for answers. Some of your symptoms are MS like, and some are not. Symptoms coming and going over short periods of time like a few hours are not typical. Also achey joints aren't typical either. However your electric shock symptom is quite typical. It is called "L'hermittes." Google that if you can.

Fatigue and dizziness are also quite common. And the bladder issue is too. That's called a neurogenic bladder. It's not a lot of fun!

You do need to be seen by a good neurologist and preferably an MS specialist. Please ask questions as you think of them. Keep is posted as to how you are doing! We are glad to have you here.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Xaleah Xailee
Regular Member

Date Joined Dec 2013
Total Posts : 68
   Posted 4/2/2014 9:11 PM (GMT -6)   
Thank you for your response, I will google L'hermittes and read up on it.

Most of my symptoms are not over short periods of time. I have not told many people about the possibility of being diagnosed with ms, just my husband and 2 really close friends. I have not told my mother or anyone else in the family, I figure right now I will just find out what is going on with my body and go from there.

It is my understanding that Syringomyelia and MS have similar symptoms.

The appointment to the neuro will come in the mail and it will be at a hospital 2 1/2 hours away from where I live as that Neuro is suppose to be a really good dr. My dr asked me if I wanted to see him or if I wanted to see someone at our hospital and I told him to send me where he thinks I need to go. So that was there.

Joint pain is something I have had to deal with for over two years, but I am thinking some sort of arthritis as my dr said he could see it in my lower back. Just mentioned it here because I am trying to sort through what is going on with my body and rule out things.

Thank you for the kind welcome, and I look forward to getting answers to my questions.
Xaleah Xailee

Bipolar, PTSD, OCD

Syringomyelia 2 focus' one from T3-T5 and the other from T7-T8

Methoprazine 10mg at bedtime
Oxcarbazepine 300 mg once per day
Wellbutrin XL 150 mg once per day
Ativan as needed
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