First off, Hi everyone.
A little about me. I am 32 years old, married mother of 3. In January I got a diagnosis of Syringomyelia in my T-spine, two focus', one from T3-T5 and the other from T7-T8, they are not very big, just 1.44 mm in diameter. I have not had a mri of my head or c-spine to find out if I have Chiari or any Syrinx's in my c-spine.
Anyway, I have a lot of symptoms that my doctor now thinks may possibly be MS. He has me referred to the Neurologist but I have not had the appointment come yet and he wants an MRI of my brain.
Lately my body has been full of weird symptoms, and to be honest I have had some of these before in the past.
A few weeks ago I fell down the stairs twice within a few days and hurt my back, bruised and stuff. Then a few days after that I lost balance when going to the bathroom and fell and hit my head on the narrow strip of the door. Balance has been an issue for me for some time, getting worst sometimes. Its been happening off an on for a long time, but the past few weeks worst.
I really did not know much about MS, but after finding out that they were going to be looking into it for me, I read a little information.
Symptom wise I definitely have the balance and dizziness portion of it. With regards to my bladder, I have issues peeing, I will begin peeing and then stop, but I still need to pee and I have to push to pee, then I will stop and have to push again, its like my bladder does not empty on its own.
I have really bad memory problems.
Just to include here I also have a diagnosis of Bipolar disorder, got the diagnosis about 2 years ago and it is most likely type 2, I do not loose touch with reality or hallucinate or anything like that, and for the most part my mania is hypomania.
There have been times when I have spoken where it has felt like I was speaking with a mouth full of cotton, and my words came out jumbled and whom ever I was speaking to had no idea what I was saying.
I have had difficulty swallowing, or really what feels like my body has forgotten how to swallow, but this does not happen very often.
Fatigue, is bad at times. Right now it feels like my body has its days and nights mixed up. I am hardly sleeping night time at all. Then At around 8:30 am I force myself to go to sleep and I sleep until 12:30 or sometimes even 2-2:30. Sleep disturbances make me a little nervous because it often is the first sign that I am going into a hypomanic/manic episode so I try to sleep in the morning especially if I have not slept in the night.
I have the electric shock sensation that goes down my T-spine. This was actually what lead to the mri of my t-spine and l-spine and getting my diagnosis of Syringomyelia.
I also have periods of time where I will wake up with both arms tingly, sleeping, pins and needles or just plain heavy feeling. This might happen several times in a day or two and then go away for a week or so and then return.
I have no idea if this could be related or not, but this past week or so I have been having issues with floaters in my eyes and a lot of blurryness like I am looking through a fog.
Have definitely been having pain, Joints are affected, hips and knees and knuckles. Also my back, I have had pain in my back for years, some of which is caused by things in my spine, My L5 is fused to my sacrum so this causes pain in that area because I do not have the movement that I should have there.
As I said I do not have a diagnosis yet, but I just feel like being here and talking may help some with the things I am dealing with. I feel a bit overwhelmed.