Posted 4/29/2014 9:10 AM (GMT -6)
Hi everyone, I'm new here and this is my story.
Three yrs ago I started having heart fluttering, joint aches and dizziness, after 6 months they finally diagnosed me with Lyme. I started treatment of abx and felt better for a short time. I then went to a LLMD and continued treatment for the next 2 yrs, including IV abx. I felt better at times but never fully recovered. After 2 yrs of treatment and driving 3 hrs to see this Dr. I discontinued treatment due to never fully feeling good. I have had 4 MRI and they all show 4 lesions on the brain, but they have not changed in size and no new ones. The last MRI now shows a "black hole". My local ID dr. says that I am no longer dealing with Lyme and that I have MS. I have been to 6 neurologist in the past 3 yrs and only one says that I have MS, the rest tell me that it is still Lyme even though the test for Lyme have come back negative. I have had a spinal tap and that showed MS, but was told it could be a false positive because of the Lyme. I live in Florida and have even flown to Ma. to see 5 specialist there. No luck. I am at wits end. My symptoms are extreme dizzy, I feel like a tree blowing in the wind, heart fluttering, tingling up the back of my head, numbness in my legs and hands, weight loss, shooting pain up the left side of my head, extreme fatigue, can't drive due to the dizziness, forget the easiest of words when talking and spelling, feeling like I'm shaking inside, hot flashes, feeling like I'm not in the moment, chest pain, can no longer wear a bra feels like my rib cage is being crushed, hip aches, knees feel like they are freezing from the inside out. I think there is more but for now I think that is enough. Any input would be appreciated. Just to let you know I have tried acupuncture, massage therapy, homeopathic therapy, and western medicine.thanks everyone