I always responded to the solumedrol however, I hated the side effects. My presenting symptom was vertigo. Over the course of 3 weeks it progressed to where I was wall walking. I was diagnosed quickly over a matter of 5 weeks. Over several weeks, my vertigo got better. This was without treatment. Over the next year it continued to improve.
I still have constant but mild vertigo. I have had it for almost 8 years now. Copaxone doesn't treat my symptoms. It has modified my immune system so that I have fewer acute flares. Each time I flare, I am left with symptoms. I'm numb from mid-shins to my toes, balance issues, vertigo, nystagmus and some bowel and bladder problems. I fully expect these to be permanent symptoms.
MS is considered incurable and progressive. Due to the fact that you responded very negatively to the steroids, you may want to revisit your diagnosis. Perhaps you still have a Lyme disease problem. Lyme typically responds poorly to steroids.
I'm sorry you are so very sick. I hope you find something soon that helps you. Keep us posted. Ask any questions you may have.
Diagnosed with MS July 2006
I have no lesions on my soul and so I live with no limits.