Searching for answers- possibly MS

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BriElizabeth
New Member


Date Joined May 2014
Total Posts : 4
   Posted 5/21/2014 8:49 AM (GMT -6)   
Hi. I'm sure there are similar posts out there but my case is very unusual. I'm hoping someone can give me some insight.

First I have 2 autoimmune conditions- autoimmune hepatitis and hypothyroidism. Both which are I remission and my drs have told me these are not the cause.

Back in November I was sitting on a couch babysitting (the boy was asleep for the night) I went from totally fine to excruciating pain in my left knee. I was immediately in tears. I went to get ice and could not walk at all. Parents came home helped me to my car and my boyfriend helped me in our home. It did calm down slightly and I could limp. Er few hours later and they said it was a sprain. However I was sitting. I didn't not injure myself.
Went to orthopedic and rheumatologist and over time we ruled out any type of injury/tear, infection, lyme, arthritis (all kinds) and blood clots. Finally resulting in exploratory surgery as biopsy this past April. Results were fine. Being told my knee is 'completely healthy'.
I have had fluid continuously drained. Pain meds and cortisone did nothing. Now my left knee is improved still swollen and sore but my right knee is starting as well. I have a hard time getting up stairs and I can't run or squat down. This is it normal for anyone who is told to have nothing wrong let a long a 24 year old.

Yesterday my orthopedic told me I need to see a neurologist to rule out MS and anything else. (Forgot to mention since I can't walk well upstairs I tend to tap my toes on the stair causing an electric shock type of pain through my knees to my toes.)
I was hoping anyone could tell me if this is close I how I would be feeling or if it's a long shot. I know everyone is different and there are other symptoms as well. I am very tired constantly but I've always put that with my autoimmune conditions.

Thank you for reading all of this! And I appreciate any thoughts, ideas, questions.

Bad Mojo
Regular Member


Date Joined Aug 2010
Total Posts : 70
   Posted 5/21/2014 6:06 PM (GMT -6)   
Like you mentioned, everyone with MS has different symptoms. Yours however, do not sound like MS to me. Good luck in getting a diagnosis. Not knowing is the worst!

BriElizabeth
New Member


Date Joined May 2014
Total Posts : 4
   Posted 5/21/2014 6:12 PM (GMT -6)   
Ok thank you! Yea I'm not sure. And like you said not knowing is the worst! However it also took 4 years to diagnose my liver disease because it didn't present as it should. I guess I'll find out when I see the neurologist.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 5/21/2014 6:49 PM (GMT -6)   
I agree with Bad Mojo. This sounds like a joint issue. MS is a disease of the central nervous system. I've never heard of an MS patient having fluids drained from a swollen and inflammed knee.

I hope you find answers soon! Your symptoms sound awful! Take care and best of luck!

You may want to re-visit Lyme. It is very common to have a false negative. Consider posting to our Lyme board.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

BriElizabeth
New Member


Date Joined May 2014
Total Posts : 4
   Posted 5/21/2014 6:55 PM (GMT -6)   
Thanks. My dr suggested getting checked for it because since there is no damage or injury he suspects the pain is with my nerves. Since surgery and biopsy showed absolutely nothing wrong that is the only thing that wasn't able to be checked through any of my tests. I was checked for Lyme twice with blood tests, and twice from the fluid. As from two different drs.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 5/21/2014 7:06 PM (GMT -6)   
I've never heard of nerve pain causing joint fluid. Nerve pain could cause the extreme pain though.

I can't believe you had to have surgery! Yikes! That's awful!!
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

BarnGurl
Veteran Member


Date Joined Sep 2013
Total Posts : 1426
   Posted 5/26/2014 5:26 AM (GMT -6)   
Hi Lyme makes joints blow up. Right now I have three joints blown up. The tests for Lyme are not reliable. I would try to find a llmd to see if it is indeed Lyme. The disease can be treated with antibiotics.

BriElizabeth
New Member


Date Joined May 2014
Total Posts : 4
   Posted 5/26/2014 6:27 AM (GMT -6)   
Well it's only the one knee that was swollen. After the surgery swelling went away. The other knee/leg has pain now but no swelling at all. I've seen an ortho, rheumatologist, physical therapist and my reg dr who is gastro and all say no lyme. I've had every test and scan possible done more then once over 7 months. And was also treated with antibiotics and anti inflammatory meds at different times to see if anything helped. It did not. I have improved greatly since the first few months but it has also changed from how it was before and is now on the other leg. It's more my 'legs' then my knee now. Thanks though. I'll just see what the neuro suggests next week
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