Thank you for responding Gretchen and for your suggestions. I haven't posted to any blogs before so that is helpful. I go to the doctor two to three times a week and have had MRI brain imaging but the neurologist flipped through all of the charts within five seconds and said she saw nothing. I carry them with me in the trunk hoping someone might spend a little more time reviewing, or maybe that was normal. It feels like it has been a major effort to not just be shuffled out the door. I think/hope I'm being polite to all of them. But it's as though I am not an easy fix so they don't want to deal with me. Lyme was tested and came out okay, and the only thing that has consistently been wrong with all of my blood work has been very low testosterone. So my PC doctor is referring me to a urologist next after I just finished with a hemotologist. My pain doctor is the one who said she thinks MS should be suspected, which is more than I have to go on from anyone else. The pain I experience is back of skull and into shoulders and its pretty severe. A lot of people don't understand that chronic fatigue syndrome feels like you just worked a full day when waking up after eight hours sleep. I know I didn't until I have lived it. So I'm on losartan for BP, hydromorphone, and other pain meds, special order ketamine cream, and these things do not make a dent in the pain, or only slightly. I'm very light sensitive, hence the blacked out Windows, and skin is sensitive to burning. Don't drink alcohol, and really not interested in eating, so am looking at the New soylent product. But I'm thankful for this community and maybe with that additional info you can help guide me to the correct forum. I feel alone and hope no one feels like this, but if they do maybe they can tell me what has worked for them. Thank you.