Numbness Left Side & Buzzing

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JadedLotus
New Member


Date Joined Jun 2014
Total Posts : 6
   Posted 6/4/2014 8:27 PM (GMT -6)   
Okay so here it goes. Past few months I've developed a tremor in my left hand that comes and goes I'd say every few weeks. No big deal. Then the left side of my face on my cheek bone and chin started feeling numb/kind of tingly like novocaine shots had been injected. It comes and goes coming every few days to now every day every few hours. It lasts few a few seconds to 2 minutes. Sometimes it radiates down my neck for a few seconds. Saw my primary dr who wanted to get an mri and blood tests. Few days later the numbness and reg. sensations hit while at work but then I got a buzzing vibration in my left shoulder. After 5 hours told my primary (I work at the clinic) who recommended I go to er right away to rule out stroke or tia. E.r. doc did a c-scan and said everything was fine but recommended I go to a neurologist. 5 days of this with same symptoms (numbness, buzzing and heaviness) and saw a neuro. I have an mri and eeg next week. MS was mentioned by all three docs and now I'm a bit worried. Are these commons symptoms? Day 6 I got into my hot car after work and the right side of my face started to feel numb and my right eyebrow drooped. It did it again today and I assume is associated with the heat. It really affects both cheeks and right eyebrow whenever I'm in the heat. My left side has sensation s regardless of temperature. My whole face just feels off and my energy levels have plummeted. My left side is very heavy but the vibrations have subsided now Day 6. I have a history of dizzy spells and fainting episodes for the past 20 years that no doctor has yet to fully figure out. I am 24 female. Any advice or suggestions would be greatly appreciated! Thank you.

voodoodoll
Regular Member


Date Joined Mar 2014
Total Posts : 49
   Posted 6/5/2014 10:06 AM (GMT -6)   
Hi JadedLotus! I can't confirm or deny if you have MS from your symptoms, but I have been confirmed with MS & can share with you my symptoms. I have left side numbness--it is continuous since onset & is just a half dead feeling--no tingling. It does radiate at times when I am stressed or when I get overexerted or too hot. When it radiates to new areas it feels tingly. For the most part my face and foot on the left side are so slightly numb that I don't notice until it radiates. Then they become tingly and bothersome. The numbness will sometimes radiate to my right side..usually hand/arm, face, and foot. I have 4 lesions confirmed by MRI--one on my medulla, and 3 on my cervical spine. My energy level goes downhill fast...I drink a half pot of coffee in the morning, and another half pot around 4pm to get me through the evening. I have heaviness in my left side when the numbness is intensified. I am just beginning to have dizzy spells which neuro blames MS--it's not frequent enough yet that I want any medication for that. I have cramps/muscle tightness in my hands which I have been taking Baclofen (muscle relaxer) for...it has helped with no side effects. I hope they figure things out for you quickly...I was fortunate that my diagnosis came very quickly. Good luck!!
***********************************
Diagnosed with MS Feb 2014
Copaxone 20 mg daily injections Mar 2014

JadedLotus
New Member


Date Joined Jun 2014
Total Posts : 6
   Posted 6/5/2014 10:52 AM (GMT -6)   
Thank you for replying! I have an MRI next week and will find out a week after that. I hope it isn't but I rather have answer than to not know. I've noticed if I get hot or go out to my car on a hot day the numbness spreads to the right side of my face and affects my eye and cheek area. Does this sound like what happens to you ? I didn't think ms could affect both at the same time.

voodoodoll
Regular Member


Date Joined Mar 2014
Total Posts : 49
   Posted 6/5/2014 2:04 PM (GMT -6)   
By both...do you mean both sides of your body?? But yes, my numbness is predominantly on the left side but travels to the right side while my left side is still numb. I have this problem mostly when I am stressed out or worried about something. Stress is my worst enemy...it makes the numbness much worse. When I go for a walk on a hot day, by the time I make it back home (approx 20-30 min) sometimes my right hand & lower arm are also numb...along with my middle 3 right toes. *this is in addition to my left side always being numb to some degree. The right side numbness usually goes away pretty quickly after I sit down & cool off when its caused by being hot or from exercise. Stress is a different monster...it makes the left side worse..it goes more into my face, eyes, and sometimes scalp (which feels like worms crawling on my head)...and over to the right side to wreak havoc too lol. It doesn't go away for a few days or so...I guess when I'm less stressed :D
***********************************
Diagnosed with MS Feb 2014
Copaxone 20 mg daily injections Mar 2014
Copaxone 40 mg 3x week injections May 2014

JadedLotus
New Member


Date Joined Jun 2014
Total Posts : 6
   Posted 6/5/2014 2:16 PM (GMT -6)   
I'm at my doctors right now so I'll reply if I hear any other news. I'm only 24. How long have you had it and how long to get diagnosed? Also, when I have this numbness kind of feeling, I can still move like smile and move my eyebrows up and down but they feel like anchors and feel extremely weird if I force the numbed area to move. Do you have complete loss of sensation ? Thank so much for replying! I feel so alone and like I'm going crazy.

voodoodoll
Regular Member


Date Joined Mar 2014
Total Posts : 49
   Posted 6/5/2014 2:43 PM (GMT -6)   
I'm 45 and the numbness just started out of nowhere on Jan 21st of this year. I went through heart tests first--all were fine. When I had a CT Scan done it showed the spot on my medulla which caused the MRI to be scheduled. As soon as the MRI confirmed 2 lesions--one was active--I was put into the hospital for 3 days for a steroid IV. I was officially diagnosed on Feb 20th. They did a lumbar puncture also while I was in the hospital but it was negative. The steroid IV made the active lesion nonactive--which is great. I have since had a follow up MRI of my brain & cervical spine...I have 2 new lesions, but both are non active. I started Copaxone on March 25th...it takes 3 months to begin working to prevent new lesions..so by the end of this month it should hopefully be working. When my numbness is strong in my face I usually check periodically in the mirror to make sure my mouth is not drooping when I smile--it has never drooped, just feels like it. I don't have complete loss of sensation--it is usually pretty light numbness which goes into moderate during episodes but I have never lost all feeling. Good luck at the doctor...and from what I've read on MS it is a crazy disease that affects everyone differently. Hopefully your MRI will give you some answers.
***********************************
Diagnosed with MS Feb 2014
Copaxone 20 mg daily injections Mar 2014
Copaxone 40 mg 3x week injections May 2014

foghaze
New Member


Date Joined Jun 2014
Total Posts : 5
   Posted 6/7/2014 9:46 AM (GMT -6)   
52 year old male that has spent 2014 in bed, some work, many doctor appts. Neurologist gave up saying if MS nothing further she can do. Rheumatologist gave up after checking for Addisons and Hemochromatosis. I do carry the gene for the latter. Next will be a Urologist as the PC doctor is stumped. Symptoms match both of yours above, although I also get a sunburn after tem minutes in the car. Face and arms only, but the heat and numbness don't go away for a day. Low BP in the mornings 100/70 and to 155/100 in afternoons. Fever of 101 builds everyday between 1-2 PM. I have not been diagnosed with anything definitive though and feel abandoned by doctors who have given up on me, or say "dial 911 and get admitted." But I'm thankful for this forum and am hanging in there for now. Anyone tried going to soylent instead of food? No appetite and no interest in eating on this end. Thanks.

foghaze
New Member


Date Joined Jun 2014
Total Posts : 5
   Posted 6/7/2014 9:59 AM (GMT -6)   
Forgot to mention that I had my bedroom Windows blacked out with plastic. That and a big fan helps with the cool down period. I think I'm the only person who misses this last winter;-) good luck to all.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 6/7/2014 12:16 PM (GMT -6)   
Dear foghaze,

You sound so critically ill. This doesn't sound like MS. It is not typical to run a daily fever. You may want to start your own thread instead of posting to someone else's. You may get more responses that way. You might consider posting to other boards here at healingwell. You might find other diseases more closely match your symptoms. Please understand I am not chasing you off. Try lupus and Lyme to start.

I don't at all understand why a neurologist would give you so little hope. There are some treatments for MS. You may want to start by finding a new neurologist for a second opinion. Have you had an MRI of your brain? Keep us posted.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

JadedLotus
New Member


Date Joined Jun 2014
Total Posts : 6
   Posted 6/7/2014 12:48 PM (GMT -6)   
Hi everyone, so doctors* think the start of MS, some circulatory issue or a panic attack. I have an MRI next week and then the EEG. I have neurocardiogenic syncope that they are researching at the same time and not sure if related but these new symtpms have risen in just last year. The five doctors I've seen in the past week all have mentioned MS but the last neuro would like to diagnose me with a panic attack. Says it would be better than the alternative (ms) and being so young. Can't do much now but wait. Foghaze, you could have a couple things going on at once. I kept scheduling with different doctors til I got someone to look at me or try something. It took 15 years to diagnose my syncope, and even tho it was a misdiagnosis (still fainted on the beta-blockers) , they at least tried. Don't settle for someone who gives up. My neuro yesterday even said my history and symtpms frighten her cause she hasn't encountered them before and doesn't want to misdiagnose me, and would see why I was so frustrated, but has high hopes that this round of research will find something and that she will keep trying til we run out of tests. You need to find someone who won't give up on you, especially yourself. You can't give up on yourself, cause who else can care more than yourself ? No one but you. I agree with Gretchen1, there is a ton of information on the internet and forums. Keep looking and searching and you'll find someone else or a group of people who share your same symtpms. And maybe find a diagnosis. Don't lose hope! :)

Post Edited (JadedLotus) : 6/7/2014 2:32:35 PM (GMT-6)


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 6/7/2014 10:04 PM (GMT -6)   
I'm glad you are getting an MRI!
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

foghaze
New Member


Date Joined Jun 2014
Total Posts : 5
   Posted 6/8/2014 5:08 PM (GMT -6)   
Thank you for responding Gretchen and for your suggestions. I haven't posted to any blogs before so that is helpful. I go to the doctor two to three times a week and have had MRI brain imaging but the neurologist flipped through all of the charts within five seconds and said she saw nothing. I carry them with me in the trunk hoping someone might spend a little more time reviewing, or maybe that was normal. It feels like it has been a major effort to not just be shuffled out the door. I think/hope I'm being polite to all of them. But it's as though I am not an easy fix so they don't want to deal with me. Lyme was tested and came out okay, and the only thing that has consistently been wrong with all of my blood work has been very low testosterone. So my PC doctor is referring me to a urologist next after I just finished with a hemotologist. My pain doctor is the one who said she thinks MS should be suspected, which is more than I have to go on from anyone else. The pain I experience is back of skull and into shoulders and its pretty severe. A lot of people don't understand that chronic fatigue syndrome feels like you just worked a full day when waking up after eight hours sleep. I know I didn't until I have lived it. So I'm on losartan for BP, hydromorphone, and other pain meds, special order ketamine cream, and these things do not make a dent in the pain, or only slightly. I'm very light sensitive, hence the blacked out Windows, and skin is sensitive to burning. Don't drink alcohol, and really not interested in eating, so am looking at the New soylent product. But I'm thankful for this community and maybe with that additional info you can help guide me to the correct forum. I feel alone and hope no one feels like this, but if they do maybe they can tell me what has worked for them. Thank you.

foghaze
New Member


Date Joined Jun 2014
Total Posts : 5
   Posted 6/8/2014 5:12 PM (GMT -6)   
Thank you too jadedlotus. I hope you also find your health and appreciate the encouragement.

foghaze
New Member


Date Joined Jun 2014
Total Posts : 5
   Posted 6/8/2014 5:38 PM (GMT -6)   
Sorry, forgot my disorientation, clumsiness and numbness on right side. I wake up st night from leg cramps In the calves. Just trying to get this right so hopefully I land in the right group and thanks so much for listening. Happy week to all.
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