Not sure if this is ms

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FunnyStrangeIfAnything
New Member


Date Joined Jun 2014
Total Posts : 3
   Posted 6/15/2014 9:46 PM (GMT -6)   
Hi, everyone, I'm a newbie. It started a few years ago when I was maybe 35 or 36, I started having dizzy spells. My doctor sent me to a neurologist who immediately told me I had benign paroxysmal positional vertigo, even though I made it very clear that I had only lightheadedness and NO sense of motion. She also couldn't reproduce the episodes with Dix-Hallpike tests. Anyway, I was given a prescription for motion sickness medication and dismissed. Fast forward to last summer, when I had a section of my back the size of a softball go numb. Numb enough I pinched it with my nails and drew blood and stiill didn't feel a thing. It stayed numb for a couple of weeks and came most of the way back. about a week later same thing, only on a softball-sized spot on my belly next to my navel. After that came back most of the way, my right labia went numb. That never came back to normal. Since then my right foot has gone numb in a stripe up the center. It just started in my 3rd and 4th toes and has gradually worked its way up into my ankle now too. I also have numbeness in my fingers sometimes, and my face sometimes, I've also had issues sometimes where I drop things. Just all of a sudden my hand won't be holding whatever it is anymore. This scares me because I have a 14-month-old and don't want to drop her. Also sometimes I fall, unrelated to the dizziness. I won't be dizzy, just sometimes I will lose the ability to be upright. That's the only way I know to explain it. It's transient, because I can catch myself and I'm fine again, or right after I fall I can get right back up and be fine. Neurologist (different one) has now done nerve testing and said I have marked nerve damage, so I have an MRI (without contrast-is that normal for MS testing?) and evoke potentials scheduled in 10 days. I'm getting worried. I'm very Type A personality who hates being dependent on anyone so I really don't want a DX of MS. Does this sound like MS or can I hope for something more benign?

FunnyStrangeIfAnything
New Member


Date Joined Jun 2014
Total Posts : 3
   Posted 6/15/2014 10:31 PM (GMT -6)   
Oh, I forgot to mention, the neurologist is the one who planted the MS "seed" in my head. He said my symptoms sound like Remitting-Relapsing MS. Please someone tell me there are other things that could be causing these symptoms. Thanks for reading all of this.

Chotti
Veteran Member


Date Joined Oct 2013
Total Posts : 506
   Posted 6/15/2014 10:52 PM (GMT -6)   
HELLO..

Nice to meet you..Welcome you To a special place with many special people who genuinely care about others.

I have been in the same situation as you and it has been a real puzzle to figure out what was causing most of the symptoms. I have similar symptoms as u described. Just standing then all of a sudden feel weightlessness could not stand just fall to the floor or sit down before I would fall or pass out. This was after the birth of my second child. The diagnosis was pinched nerves in my back from child birth and the weight of pregnancy. These tend to cause nerve issues. Weakness, numbness and pain.

U have a good understanding of what u need to do on order to establish a clear understanding of the importance of diagnostic techniques to move foreword & take one day at a time until a clear diagnosis is found.

U can be independent and take charge of UR tests and treatments. Be UR own best advocate. Until a diagnosis waiting for the answer is really tough. Waiting is part of the testing process. X-rays of UR back & neck is a clear visual aid to find a diagnosis, or rule out one.

There are great PT therapist who can show u ways to adapt to changes in UR body & still be what u can be with limitations only u can become familiar with & understand. Build strength and connect with what is important to stay in tune with urself & how to take care of ourselves and learn what keeps us healthy.

UR diagnosis is stemming from UR symptoms there really is no test for MS. Physicians have to rule out other diseases.

Wishing u the best and keep us posted. Writing posts can be great stress release. HW is a great support system for whatever the diagnosis.

Healing prayers sent UR way.

Peace, Luv & Laughter
"As long as there is breath there is hope, LIFE is a GIFT. "

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 6/16/2014 7:19 AM (GMT -6)   
Hi funny...

Your doctor has ordered the correct tests. The MRI needn't have contrast to indicate MS. The contrast can show active lesions, but lesions will still show up. More important than contrast is what are they doing the MRI on. Please ask for brain and spine. The numbness seems to indicate spinal involvement, in my opinion. The evoked potentials test can be very helpful too. It will show whether or not your central nervous system is functioning typically. The usual evoked potentials are extremities, hearing and vision.

The hormones released during pregnancy can be neuro-protective. It is quite common for MS symptoms to flare up 6 months to a year after delivery depending upon if you breast fed and for how long.

I do hope you get answers soon. You have some distributing symptoms. I hope it isn't MS. If it is, you will learn to cope and manage.

Keep us posted. Best of luck to you!!
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

FunnyStrangeIfAnything
New Member


Date Joined Jun 2014
Total Posts : 3
   Posted 6/16/2014 9:22 AM (GMT -6)   
Thank you so much for the replies! Yes, he ordered it for brain and spine, but only certain parts of the spine related to where my torso numbness is. How long does it typically take to get results? Right now I'm afraid to commit to anything because my symptoms vary from day to day. I really want test results so I can get a plan of attack. I have many people that depend on me. I can't afford to have the tables turn so I'm the dependent one.

Wish me luck! I'll update when I know more...

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 6/16/2014 6:06 PM (GMT -6)   
It's takes 3-5 days for me. I don't know if that's typical. Be sure to ask for a copy of the MRI and the report. Start a notebook and keep all lab reports.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.
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