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Googlecrazy
New Member


Date Joined Jun 2014
Total Posts : 10
   Posted 6/17/2014 9:36 PM (GMT -6)   
Well I have been a reader for a long time but thought maybe someone out there will read my story and just say dang I can help her! Started Dec 2013, when I had a feeling right before Christmas of severe chest pain with tingling and heaviness in my arms and legs (hands and feet too). So off to the er we when, after my d dimer came back evaluated the dr did a ct scan and found then what he thought could be cancer along with some scattered lesions on my spine. He sent me to a surgeon right away, at that doctor he started with trying to figure out what it was not so he started with a chest xray (looking for lung cancer), then a mammogram, and last a colonocsphy (colon cancer). Once he found nothing he did a mri of the liver and it was found to be a large hemangioma on my liver which I had surgery removed in Feb 2014. But within those months nothing was done about the chest pain and tingling. So I thought maybe after the surgery things would start disappearing but no, they have increased. I have alot of symptoms and was wondering if anyone has some of the same things. I did have a tick bite about a year ago, which left a small rash and I did get sick right after but it was with a more cold that I had for over 6 weeks. But my symptoms now are severe joint pain in my hands (both), feet and jaw. I have pain in my arms and legs. I have blurred vision that I am not sure if it is age or something else. I am very fatigue compared to my normal routine which has been since bf the liver surgery. I also have severe IBS, which I was diagnosed a few years ago with that. My primary doctor sent me to a neuro and they did a brain mri which came back normal. They also did a lyme test that came back negative but I have got to figure something out. Anyone have any suggestions for other test that I should ask for? My liver enzymes are still elevated I guess from the surgery. Blood test show a few things elevated or too low but nothing have raised any concern with the doctors. Does a spine mri or brain mri show MS?

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3567
   Posted 6/18/2014 7:30 AM (GMT -6)   
MS doesn't typically cause severe joint pain. It is very common to have a false negative Lyme test. Please post to the Lyme board. Did you not receive any treatment for Lyme?
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3567
   Posted 6/18/2014 7:32 AM (GMT -6)   
I see you've already posted on Lyme. Good plan.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.
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