CCSVI. Anyone diagnosed or treated with this ?

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LoveTheLight
Regular Member


Date Joined Apr 2014
Total Posts : 112
   Posted 6/20/2014 2:09 PM (GMT -6)   
CCSVI
Known and discovered by doctor who then treated the blocked veins of his wife curing her of MS.

I had the test. Ultrasound Doppler and am highly
Positive in 4 of 5 criteria.

I am looking into the procedure.

Anyone here diagnosed or been treated ?
Any responses appreciated.


Thank you.

Gretchen1
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Date Joined Jan 2007
Total Posts : 3571
   Posted 6/20/2014 3:23 PM (GMT -6)   
You are referring to the Italian doctor, Paolo Zamboni. He treated his wife who did experience a reduction in symptoms. She was not cured.

When this news first broke in 2008, I was so excited. I'm waiting and watching now. I'm not so convinced anymore. It seems it can be helpful to some.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 6/20/2014 3:36 PM (GMT -6)   
http://www.healingwell.com/community/default.aspx?f=32&m=2003342
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

LoveTheLight
Regular Member


Date Joined Apr 2014
Total Posts : 112
   Posted 6/20/2014 6:41 PM (GMT -6)   
Thank you for the link
This person seems to have had success with the procedure and sustained it. The member Dave in the link post you sent me.
Have you heard of any others who have done the procedure?


http://mylifewms.blogspot.com/2011/02/plugged-in.html?m=1

Gretchen1
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Date Joined Jan 2007
Total Posts : 3571
   Posted 6/20/2014 7:05 PM (GMT -6)   
I did meet a lady at an MS walk that had it done. The procedure had to be repeated within 6 months. She didn't feel it helped much. She thought perhaps she had fewer headaches.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

LoveTheLight
Regular Member


Date Joined Apr 2014
Total Posts : 112
   Posted 6/20/2014 11:50 PM (GMT -6)   
Yeah it sure seems like a mixed result

My doc said 30 percent have no improvement and though many have dramatic improvements.

He admits there should be more to the procedure like clearing the stuff that is causing blockages and also treating the cause after so it doesn't repeat.

I am torn about it.
The risk of clots to brain is low but there.
The procedure is not a huge deal.
Maybe worth a try.

Gretchen1
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Date Joined Jan 2007
Total Posts : 3571
   Posted 6/21/2014 1:01 AM (GMT -6)   
Clearing the stuff? I was under the assumption this was just angioplasty. Is there a substance that's removed?
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

LoveTheLight
Regular Member


Date Joined Apr 2014
Total Posts : 112
   Posted 6/21/2014 6:52 PM (GMT -6)   
It is angeoplasty.
But the reason they do it is the veins are blocked
With " stuff". My doctor and the lab tell me its biolfilms and can see actual infections inside the biofilms that exist there that start by attaching to vein walls and build up over time til block the blood flow.

So when you do ballon of vein it opens the vein. But where does this
Film go ? Its can't just be pushed out of the way ?
So its still there. And they don't scrub or clean vein walls like they can artery walls.

So people get reblocked as this stuff continues to exist and grow back to block again. If they would clean the area and take out the stuff blocking it in the first place the success would be higher.
They don't have a technique yet in place but it will come and they are talking about it and people know it is ended to be added to the procedure. They need to design a mechanism or procedure to do this.

Probably in years to come.
For now patients are expected to keep there blood fibrin and biolfilm free as possible with thinners and enzymes and even antibiotics and diet considerations etc.

LoveTheLight
Regular Member


Date Joined Apr 2014
Total Posts : 112
   Posted 6/21/2014 6:57 PM (GMT -6)   
If you watch some of videos of procedure they simply show the wall thicker there and it's pushed to sides.
But they don't talk about it or address it fir forward future and
That is why I believe it just reblocks and why people end up getting it redone in a couple years.

It's not a collapse of veins
I saw my test being done live
I saw the blockages live and the blood flow too and what happened
When it hit that area.

Its scary actually to see it.
I wanted to reach in with needle to my neck and pull that stuff out
But it's not fluid like that. It's thick and sticks to sides and even hardens to sides

But like calcium build up in pipes you can dissolve it
It just is not easy and it takes a lot of time and treatments
And you can feel ill while trying because infections like to live
In there too.

Its complex.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 6/21/2014 10:03 PM (GMT -6)   
I've not heard or read anything about this. I only know about the stenosis. Do you have a link to any articles about this?
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.
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