Dx MS your road to

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Lilacs
Regular Member


Date Joined Jan 2013
Total Posts : 23
   Posted 8/16/2014 3:57 PM (GMT -6)   
Anyone take a long time to get DX of MS? I have had nerve pain for four years and it has gotten worse It started out in abdomen and it felt like tight bands.

I was referred to neuro MD. He wants to send me to MS specialist.

Pros for MS.
1. Pain all over and some facial vibrations.

2. White matter on brain MRI.

3. Looks like central nerve problem as nerves themselves are not damaged.

Cons for MS

1. Spinal tap clear

2. Advanced age. Now I am 66.

3. No optic neuritis

4. Walk well.
Female age 65. Dx with neuritis. On gabapentin, Tramadol, and Lidoderm pain patch.

Post Edited (Lilacs) : 8/16/2014 3:04:00 PM (GMT-6)


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 8/16/2014 10:37 PM (GMT -6)   
Hi Lilacs,

Welcome to the MS board. I'm sorry you find yourself considering an MS diagnosis. Many many people who end up being diagnosed with MS experienced a long diagnostic limbo. It can take many years.

White matter is a normal brain tissue. Everyone needs and has white matter. I am assuming that white matter lesions were found on a brain MRI. This would warrant a closer look.

Oligoclonal bands only show up in spinal fluid when there is an active flare. It makes it appear as if there is an active infection in the central nervous system. The blood work taken at the same time would appear clear of any infections.

Not all people who have MS experience optic neuritis or walking issues. I have had optic neuritis but I walk quite well. I have balance issues but I can walk for miles.

Nerve pain can be caused by a couple of dozens of conditions. It can be caused by Lyme disease, a B vitamin deficiency, diabetes an more. It becomes more common with age.

People of all ages have been diagnosed with MS. It is considered much more common in people aged 20-40. I was diagnosed at 43.

Will you be seeing an MS specialist? Keep us posted.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Post Edited (Gretchen1) : 8/16/2014 9:40:15 PM (GMT-6)


Lilacs
Regular Member


Date Joined Jan 2013
Total Posts : 23
   Posted 9/11/2014 5:44 PM (GMT -6)   
I went to MS doctor today and he said no to MS. He said some of the things showing up on MRI could be related to high cholesterol. high blood pressure, and diabetes.

He did take a pin to my feet and some parts were numb.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 9/11/2014 9:09 PM (GMT -6)   
Ok. I am assuming you have high cholesterol, high blood pressure and diabetes. Thanks for keeping us posted. Best of luck to you. I hope you are able to successfully treat your health issues.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.
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