Posted 9/26/2014 9:13 AM (GMT -7)
My neurologist sent me for an EMG to rule more things out, she was suspecting MS. The EMG was mostly normal, with some slowing in nerve/muscle response of the feet. The report said I displayed poor effort, if my ability was actually that poor I wouldnt be able to hold myself up according to the dr. I said it is awefully hard to make muscles and lift your leg up with needles causing horrible spasms. After laying down for nearly 2 1/2 hours I was also able to walk fairly well for the 10 steps he wanted to observe, but within 50 feet of leaving I was back to dragging my feet.
Anyway, being a normal EMG she is now leaning towards conversion disorder verses MS. I am a medical professional and have an understanding of the disorder, why, how, progression, treatment, etc... I know its a true physiological response to a psychological trauma, its not "faking it". Honestly, I dont fit one bit. She insists that I must be repressing some sort of trauma or sexual/physical abuse. This is just not the case.
She said the EMG showed no demyelination, but my understanding is it wont show anything in those areas with MS. Everything I am reading says that EMG is not at all diagnostic for ruling out MS. Either she is stupid or not telling me everything, I dont know what to think. I can not have an MRI at this time so she did agree to send me for a LP, since I have a SCS, hardware and lots of scar tissue she wants it done with a flouroscope. She is also referring me to a large research hospital for evaluation.
My symptoms have been extreme fatigue; sporadic numbness and tingling sensations in my face, head, hands, and feet, tremors, vibrations, feeling of being sprayed with water and buzzing sensations all over my body, painful muscle spasm and stiffness in my arms, back, and legs, shooting nerve pains throughout my body, squeezing sensations around my head, constant headache, bladder and bowel problems, blurred/double vision, slurred speech, cognitive problems such as slow word recall, getting lost, forgetting directions to familiar locations, substituting the wrong word, forgetfulness, etc. I also have absent ankle reflexes.
I have been told I have CRPS/RSD, arachnoiditis, syringomyleia/syrinx, fibro (these first 4 dx's the drs go back and forth with, no one agrees); i do have confirmed RA, failed fusions, cataracts, cervicle and lumbar herniations, cervicle radiculopathy, chronic pain.
Of course I dont want the MS dx, I just want a clear yes or no.
I dont know what to think. Any suggestions?
DX: Living one day at a time!