Atypical MS symptoms?

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Regular Member

Date Joined Sep 2014
Total Posts : 25
   Posted 10/10/2014 9:42 PM (GMT -6)   
I apologize in advance because you've probably had so many anxious people come here convinced they have MS and rely on you for reassurance when you're dealing with a genuine diagnosis and your own fears. So sorry in advance and thank you for indulging me. I'll try to be brief.

My doc mentioned today that my odd skin sensations could be from MS, though she does not think they are and is leaning more towards anxiety especially since they increased for me when she said the word MS. Sigh.

Anyway, the tingling/sensations I have felt are varied in location and sensation. Sometimes it's on my scalp, sometimes the side of my neck, a finger, my feet/legs, etc. All over the place. It can feel like a foot coming awake after being asleep, pins and needles (not as often), or like hot water or grease was splashed on me. Sometimes it's slightly shooting. Other times it feels more burny in patches. These are all typically VERY fleeting. I mean in the time I wrote this post to this point, I felt it on the side of my head, an arm, and a foot at different times for seconds each. I did not have them earlier today and have been improving the frequency of them over the last week to where I don't remember having hardly any the last few days until I had my appt today and she mentioned that in passing and I also learning I have an ovarian cyst.

Anyway, she said that the sensations and tingling of MS are typically concentrated in one area (or more), but more constant than the fleeting ones I describe, and they don't jump around the body that fast. Based on that and the lack of zero other symptoms, she does not feel an MRI is needed or that we need to pursue it at this time. I should also mention that my thyroid levels came out well below range and we're increasing my dose which may have something to do with this weirdness.

Anyway, would you concur that these jumping tingles/sensations are not typical of those experienced by patients with MS?

I very much appreciate your feedback. I'm hoping you can put my mind at ease and I can just go worry about the cyst and thyroid. smilewinkgrin

Regular Member

Date Joined Sep 2014
Total Posts : 25
   Posted 10/10/2014 9:43 PM (GMT -6)   
I just wanted to add that I do not think I have MS. I'm not really worried about it, but her mentioning it made me freak out a little. These sensations don't hurt either. There is no pain. Just weirdness. Oh, and this last 6 wks has been a very anxious time for me (dog death, health issues, etc) and I had a panic attack on 9/2. The anxiety is way lessened, but I think the tingles are more due to that, but I just wanted to check.

Post Edited (Elliottsmama) : 10/10/2014 8:51:27 PM (GMT-6)

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 10/11/2014 10:13 AM (GMT -6)   
Hi Elliottsmama,

I love your name. It's very sweet. I am sorry you suffer from anxiety. That's a tough one and can really affect quality of life! I am also so sorry to hear of the loss of your dog!

We do get lots of "do I have MS?" It's fine. That's why we are here. No need to apologize.

For me and I beleive for most with MS, numbness isn't transient or variable. I am numb because it corresponds with the damage my central nervous system has. I am numb on a skin level from the knees down. It's everyday, 24/7.

I hope this reduces your anxiety some! Hang in there. Please ask any questions you may have about MS.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Bad Mojo
Regular Member

Date Joined Aug 2010
Total Posts : 70
   Posted 10/11/2014 3:42 PM (GMT -6)   
I agree with Gretchen. I've had full body numbness for over 3 years now with no break. I also have burning/pins and needles sensation down the right side of my face and right arm--again, it is always there. Sometimes it feels worse when I am overly stressed, but it's always there.

I just started taking Seroquel for my anxiety. It seems to be helping. I tried Xanax but it didn't work for me. Many people use it however. Docs typically don't like prescribing Xanax (at least for extended use) because it can be addictive. I understand that a lot of people abuse Xanax.

I hope you get a diagnosis soon. Not knowing what is causing your symptoms can be very stressful. I was diagnosed with MS fairly quickly (within 3 months) but that is rare. An MS diagnosis is often given only after everything else has been found negative. Good luck.
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