Very Scared... Hot flashes, strange symptoms

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Ziggyjiggy
New Member


Date Joined Oct 2014
Total Posts : 4
   Posted 10/30/2014 11:31 PM (GMT -6)   
Hello,

I am experiencing some odd symptoms on and off for the last 6 months or so. It seems to have started with Hot flashes... Particularly at night. I will wake up for no reason in the middle of the night, and feel very hot. I've tried less blankets, fans ect. It seems to keep happening. It starte with this, and I have also had bouts of "shakiness" and now frequent muscle twitching all over, mainly in my legs. I am now starting to notice floaters in my vision. I find the hot flashes are occurring more frequently before my period starts. I've also noticed at times when I am awoken during the night, my hands are much more prone to falling asleep. Usually once I move them, the feeling immediately returns, but I've found it to recocuring more frequently. I have seen a doctor already and had vitamin levels checked, thyroid, blood work, ect. Everything came back normal. My grandmother had MS so I am terribly frightened this is what I could be experiencing. ( I am a 26 year old female) I understand no one can give me a diagnosis or say for sure... But is feeling hot\ having mild night sweats common for people with MS? This is my most frightening symptom.... I just can't figure out what's going on with me, and I just don't know what direction to look. Thanks

eat2bwell
Veteran Member


Date Joined Sep 2014
Total Posts : 534
   Posted 11/1/2014 9:30 AM (GMT -6)   
The first place to look is diet. If you are looking to treat MS there are diets which have been develop to treat MS. Dr. Swank, Dr. Wahls, and Roger MacDougall all have diets which they claim to help with MS. Diet is the key to healing all disease. If you want a good place to start go to the bible. When God put Adam and Eve in the garden he instructed them to eat the fruits and vegetables bearing seeds. That was his instruction to us for good health. Why not give it a try and see how you feel. Stop eating the process foods and drinking the sugary drinks for a month. Start eating the raw fruits and vegetables that have the vitamins and minerals in them so your body can repair itself. You do not have to figure anything out. You just need to give the body what it needs and it will figure it out. Along with diet get proper sleep so the body has time to repair itself. Get exercise so you can have good blood flow. Prayer and meditation will help to relieve the stress. Give it a try for a month and you might be surprise at how good you feel.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3556
   Posted 11/1/2014 9:31 AM (GMT -6)   
Hi Ziggyjiggy,

I like your name, by the way. Night sweats and hot flashers are not a common MS symptom. You definitely have something going on, but it doesn't scream MS to me. The best test to rule out MS is a brain MRI. If your doctor won't do that then a good neurological exam of your reflexes and nerve responses can ease your mind or get you further testing.

Have you considered Lyme Disease? The symptoms you are describing seem much more common to Lyme Disease. We have an excellent Lyme board here. They may be able to help you. Lyme definitely can cause night sweats. It is also very difficult to diagnose with just a blood test. It is very easy to get a false negative.

You are welcome to post here or on any board at Healingwell. Consider posting your symptoms on the Lyme Board and perhaps others. Keep us posted!
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Ziggyjiggy
New Member


Date Joined Oct 2014
Total Posts : 4
   Posted 11/3/2014 4:24 PM (GMT -6)   
Hi Gretchen,

Thanks for the reply. I have thought about lyme... It's just it's so rare, and the fact my Grandmother had MS is was it really scaring me. Ive heard it's not hereditary... But then I've heard it can be. I've had twitching all over my body... Is that a symptom with MS? The night sweats/hot flashes seem to happen for a few nights in a row, then my twitching increases, and more recently I noticed my hands falling asleep at night. I don't seem to have any of these issues during the day, except for feeling "foggy headed" and slight twitching... As well as the floaters in my vision. I just can't determine if the twitching, and floaters could be attributed to all the anxiety this is causing me. I am just so confused. I do have an appointment with my doctor again tomorrow... Hopefully I can't get some more answers. I know they say MS causes heat sensitivity... But when these hot flashes occur, the room in not warm.. It's cold.. So I just don't know.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3556
   Posted 11/3/2014 6:36 PM (GMT -6)   
Lyme disease is far more common than people think. The night sweats is what made me think "Lyme." It's a classic Lyme symptom.

The symptoms you are complaining about are shared with many diseases; MS, Lyme, anxiety and more. Floaters are very common. Most people have them and they mean nothing. Your hands falling asleep at night is another very common issue that usually means nothing.

Twitching can be an MS symptom. If a person with MS experiences twitching, it is due to brain or spinal cord damage from an MS lesion. A brain and or spinal MRI can show these.

If the twitching is intermittent then perhaps try to record it with a smartphone. That way you can show your doctor. I am glad you are seeing your doctor. I hope he/she can get to the bottom of this!

Keep me posted!!
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Ziggyjiggy
New Member


Date Joined Oct 2014
Total Posts : 4
   Posted 11/5/2014 3:08 PM (GMT -6)   
Hi Gretchen,

Looks like I am being sent for some hormonal blood work to see if something is out of whack. That still doesn't explain the twitching though... Or my hands falling asleep. I just became concerned about my hands because I have noticed the frequency of them falling asleep the passed month or so increasing quite a bit. Though it always seems to be my hands, occasionally my arm. Not restrictive to only one side, it happens with either arm any given night. My twitching had seemed to calm down a bit for the time being. I expressed my concerns to the doc, and he doesn't seem concerned what I'm dealing with is MS. It's just it seems strange that my hands are falling asleep so often, paired with these other symptoms. Have you ever heard of/experienced hands falling asleep at night only? I never experience this anywhere else on my body, and only ever during the night. I have tried finding out info on this limbs falling asleep only at night frequently symptom in relation to MS but I am finding it difficult. It seems it can happen a few times during the same night, and once I move them feeling seems to return, as if it is circulation related. Is circulation and MS connected?

Thanks again. It's nice to hear from someone who can share some insight.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3556
   Posted 11/5/2014 5:42 PM (GMT -6)   
I have had my hands fall asleep while sleeping. It seems to be related to how I am sleeping; what position I am in. I have never been concerned since when I roll over or change position, the feeling returns.

MS and circulation aren't really related. Certainly if a person has advanced MS and is wheelchair bound or has significant mobility limits then circulation could be impaired or effected.

I am glad you are getting further tests and I am glad your doctor doesn't feel it's MS.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Ziggyjiggy
New Member


Date Joined Oct 2014
Total Posts : 4
   Posted 2/3/2015 1:35 PM (GMT -6)   
Hey there,

Well, I am back. I was put on birth control to see if this was a hormonal issue, but some of my symptoms seem to have re appeared again.. Although I had not had a hot flash for almost 2 months, and I suffered another hot flash again last night. My twitching has seemed to subside a bit tho. I am just so frustrated. This week one night my foot fell asleep while I was sleeping... I woke up and touched the top of my foot and it was numb. I immediately shook my leg and the feeling returned. But a foot?? I don't recall putting any pressure on it. My hands aalways fall asleep at night and since I started experiencing these symptoms, it happens so much more frequently.. Everyone just brushes it off when I say this, but I never used to have my hands fall asleep this often.. I just don't know what to do anymore. I am going to see the doctor again tomorrow, but I'm feeling discouraged, like I'm never going to find any answers. I still see floaters as well... And have a constant (some days worse then others) feeling of a "foggy" head state. It makes it hard to concentrate on anything. It's awful. :( feeling discouraged again.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3556
   Posted 2/3/2015 7:51 PM (GMT -6)   
Hey Ziggy,
It's nice to hear from you again. I'm glad your doctor is trying to find the cause of all your crazy symptoms. Did you ever get an MRI? That's the test doctors order if they are considering MS.

Have you seen an opthalmologist about the floaters?!

Let me know what your doctor says after your appointment.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.
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