Posted 12/4/2015 12:56 PM (GMT -6)
Hello I am new to this Board, I am one of those people with the MS Burn Out label.
I am 52, male, dxed in 89, I started (IFN) 1A < Rebif in 94 as a Trial patient. When I look back over those years I was very sick "Drug Sick" I injected (IFN) for over 18 years. I had been hospitalized I believe 6 times, Solu-Med at least 6 times I discontinued the drug in 2012 because I just couldn't do it anymore. I was tierd of being sick, this was a life changing desion for me.
Life changed & my body basically attacked, I headed into TCM for some idea's on how to look after myself, I headed into Nootropics for the Brain> Lions Mane Mushroom now I am up to 12 grams a day.
At times I feel like an Arthritic old Man. A year after my quitting (IFN) in 2012, I was given the "MS Burnout" label. I still have symptoms sore legs arms bone pain. My eyesight diminished after quitting, I have many Floaters in my eye's now where as I never had them before.
Oh yes abilities, I hadn't been on a Bike since my early 20's, now I am a avid rider, walker, Hiker, you might say I managed to get my life back. I still don't understand what has happened to me. My last Neuro appointment I walked Heal to Toe across the room, I haven't been able to do this since I was in my early 20's
Now I use Clinical THC @ 7 mgs a day, due to the half life of this drug being 2 hours, I spread it throughout the day & as mentioned Lions Mane Mushroom 6 Grams AM/PM
I realize this "Burnout label" is controversial and I been called a lier when I say it.
I am curious to know are there other People out there who have been given this label?
And know I still feel like I have MS, but I consider this MS 2.0