pars planitis due to MS

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voodoodoll
Regular Member


Date Joined Mar 2014
Total Posts : 49
   Posted 11/14/2014 1:56 PM (GMT -6)   
Anyone else out there have this?? A month ago I started seeing lots of floaters in my left eye & a periodic flash way out in my left peripheral vision. Went to regular eye dr & was told my vitreous lining was detaching...says not uncommon for someone nearsighted but thought was happening early for my age (46). Went back for my follow up appt with him Wednesday & he decided to send me to a retinal specialist because thought he saw very small tear in my retinal lining along with an unusual high amount of floaters in that eye. So I get call later that day & specialist wants to see me next morning..so go yesterday & she tells me I have pars planitis in both eyes due to my MS. While at the visit, she did laser surgery on both of my eyes to repair the tear in the left eye (was very small & not all way through) & to repair where vitreous was still attached & pulling hard/tearing....my right eye doing this also (I was unaware) & was actually worse than my left. Took about 10 minutes with laser on each eye. I go back in 2 months but she assured me she could do more laser surgery if necessary (she doesn't think will need to) & said if the floaters began bothering me or affecting my vision we could do steroid drops or steroid injection to help get rid of them. Anyone else out there have this eye problem? My optic nerve is fine--she checked it also. She made this sound very treatable, but sounds like I will also be seeing a lot of her from now on LOL.
***********************************
Diagnosed with MS Feb 2014
Copaxone 20 mg daily injections Mar 2014
Copaxone 40 mg 3x week injections May 2014

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 11/19/2014 7:00 PM (GMT -6)   
I'm sorry. I've never heard of this. I hope your treatment is successful! Keep us posted.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

voodoodoll
Regular Member


Date Joined Mar 2014
Total Posts : 49
   Posted 11/20/2014 12:21 PM (GMT -6)   
They told me it was rare...so of course I have it LOL The retina specialist asked to have my Vitamin D level checked...so neuro finally requested the blood test. I previously asked about Vitamin D right after being diagnosed in February & he told me supplements don't help :( Got results and it's low...21.1 so my primary is having me take 2000 Vit D daily & rechecking in 2 months. The retina doctor knows there is a link between MS & Vit D deficiency but my neuro seems clueless???!!! aggravating....
***********************************
Diagnosed with MS Feb 2014
Copaxone 20 mg daily injections Mar 2014
Copaxone 40 mg 3x week injections May 2014

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 11/22/2014 6:33 PM (GMT -6)   
Oh wow. Time for a new neurologist! I take 4,000 IU a day and my neurologist has me do blood tests to make sure my blood levels stay up. Your D is VERY low!!!
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

eat2bwell
Veteran Member


Date Joined Sep 2014
Total Posts : 534
   Posted 11/23/2014 2:46 PM (GMT -6)   
When I first had my vitamin D level checked it was 19 ng/ml. The range I was given is 30 ng/ml to 90 ng/ml. I was given some D2 to take but I feel the D3 is the best. Started taking 5000IU of D3 a day and after three months my level was 72 ng/ml. My thoughts are people that have disease should be at the upper end of the range. Sick people need more vitamin D. Here is an article explaining vitamin D.

http://www.naturalnews.com/027345_Vitamin_D_exposure_sun.html

voodoodoll
Regular Member


Date Joined Mar 2014
Total Posts : 49
   Posted 11/26/2014 12:26 PM (GMT -6)   
Saw retinal specialist again yesterday...now on 2 types of steroid drops for the inflammation in my left eye. Hopefully the drops calms everything down. She also upped my vitamin D supplements to 4000 daily. Go back Monday & she may have to do more laser surgery to weld down my vitreous lining again.
***********************************
Diagnosed with MS Feb 2014
Copaxone 20 mg daily injections Mar 2014
Copaxone 40 mg 3x week injections May 2014
Pars planitis both eyes Nov 2014

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 11/26/2014 6:15 PM (GMT -6)   
Keep us posted. Good luck!! I hope those steroid drops do the trick and get you some relief. Rest and take good care.

I'm hoping you have a nice Thanksgiving despite having to fight the MonSter!
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.
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