I'm hoping I might be able to get some advice or some thoughts. I've been trying to find out what's been causing nearly 3 months solid of symptoms, but no luck so far...test after test from specialists and GP is negative.
I have joint aches all over, especially in my knees, but without any obvious inflammation. Sometimes the pain is bad enough that I can barely climb stairs at night. I also get some stiffness in my knees as well, sometimes they feel weak. I get sore muscles, too, but to a lesser degree. I have a lot of trouble with fatigue, some days being completely exhausted at the end of work, or waking up after 8+ hours of sleep and feeling like I haven't slept. It's not always that bad, but I'm tired almost all the time.
I also get tingling sensations, especially in my feet, my left arm, and my face. My face comes with redness, and it sometimes progresses to numbness. Caffeine may make it worse, but it only seems to be loosely related. I experience "brain fog" and poor memory, too. I just can't concentrate on things as well as normal, can't do mentally taxing activities for as long as normal, and despite making more lists and relying more on my phone's calendar reminders, I keep forgetting things.
I'm having trouble at work as a result (I also am very unhappy with my job and want to get into a different line of work), and have trouble keeping up with stuff at home.
I have Crohn's disease (diagnosed July 2012), and I seem to have just entered into a flare in the past week or two despite medications...otherwise it has been pretty well controlled. I also have migraines (also since 2012 and glaucoma in my left eye (deformation of optic nerve found this summer). I had Lyme disease in the spring and was treated, but I've been tested 4-5 times since then, with 3 different types of tests, and tested for co-infections, all negative. It was a bad infection, with neurological and cognitive symptoms, so I wonder if it may have done some lasting damage.
I've had blood tests for rheumatoid factors, Sjorgensen's, indicators of Lupus, thyroid function, other organ functions. Results have been normal/negative. I'm getting expecting new blood results on thyroid, CBC, vitamins, and I think indications of function. I've been deficient on vit D before, but I've been taking a strong supplement since then.
I've noticed some things have a similarity to MS, but I don't know much more about it. Doctors haven't really said "no," but they don't seem inclined to do more testing on that so far, and I realize that it can get invasive. Chronic Fatigue seems like another likely cause, maybe Fibromyalgia, but I don't seem to have the tender points. There's also a chance that it's all just related to my Crohn's disease (that started acting up in the past couple of weeks). I'm just not sure what to do at this point.
SoUNDS more like lymes than MS, because you indicated you have it again, the lyme couldve went dormant in your body, or you were reinfected with lyme. MS also includes muscle weakness difficulty swallowing, strange walking gait.