Posted 12/16/2014 9:47 AM (GMT -7)
I was diagnosed with Lyme in 3/14. Been treating pretty aggressively. Some of the "lingering" symptoms were
dizziness (more so balance issues/like feeling drunk walking on a boat) and a right heavy shin, pretty much all neuro symptoms along with newly acquired high blood pressure and heart palps.
Throughout treatment I did have some really good days and felt hopeful. I was running 4-5 miles a day in the summer, something I never thought I would be able to do.
about two weeks or so ago, I got a new scary symptom. Like an extreme "wave" of weakness in my legs. When I tried to walk, it almost took my breath away, it wasn't constant, but when the "wave" came, it was horrifying. I had to use a cane for a few days. The dizziness also seemed to intensify throughout all of this.
Fearful of stroke, I went to the ER. Everything checked out okay (labs, chest xray, heart). That feeling seemed to go away and I returned to the "normal" symptoms of dizziness and heavy leg. I was off of my meds for the week during which I got that leg weakness, so the ER dr attributed this possibly a medication vacation, or a lyme "flare."
Knowing in my gut, that something else is going on, I made an apt with my PCP. I will be getting an MRI on my brain, spine and lumbar this Thursday. My pcp is stumped, because when I walk I have these symptoms...but believe it or not, I can actually run on my treadmill every day, even throughout the "flare" I had. So when I run, I don't have these symptoms. Nevertheless, my symptoms are pretty textybook for MS I'm told, along with some vision issues I've been having as well.
I will admit I have a very strong fear of an MS diagnosis, because I work in home care, and a lot of our clients have extreme cases of MS. I know everyone is different, but this is my reference, and causes me a lot of anxiety.
Because of my extreme anxiety, my PCP (bless her heart) wants me to return to her office to discuss the MRI findings, and discuss nothing on the phone. That way, I can ask her questions if needed, and we'll figure out what the next step is together.
So, just to prepare myself, my questions are:
1). Is it "Worse" if you have more detected lesions, or, is it all about where the lesions are located?
2). Are the injections the preferred method for treatment, (I know everyone is different) but from what I read on this board, it seems like most get the injections versus oral.
3). Once diagnosed, and prescribed a protocol, is relief of some of the symptoms imminent? Or does it take a long time of med usage to get that relief? Are various meds used until relief is realized?
Thanks all, I really appreciate your feedback.