Some advice please - thanks in advance!

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Regular Member

Date Joined Aug 2010
Total Posts : 24
   Posted 2/9/2015 9:09 AM (GMT -6)   
Hi Guys,

A little background on me. I have always suffered with migraines which started to increase in frequency about June 2012. I would get stabbing migraines both with and without aura but seemed to struggle through them. Over a period of a few days back in June I was getting weird numb sensations around my body - GP referred me to a neurologist. Here is where is started.
MRI with contrast all came back clear
EEG - clear
Bloods - clear
End result - severe neurological reaction to migraines.

On the MRI they noted a cranial venous malformation as an incidental find and said it was there from birth so not relevant.

But symptoms still lingered - came and went. Fast forward to about 3 months ago and symptoms came back but this time I was getting joint pain - completely new one. The only way I can describe it is deep pain in my joints/muscles around my joints. My elbows are the most painful. I also have facial numbness that seems to want to stick around (mainly left hand side) plus my sleep has gone crazy - I can fall asleep but now wake up multiple times at night. Its very strange though because my capacity to do daily tasks etc has not altered. In a nutshell I feel like I am going insane!! The only time I get a sense of relief is when I am doing physical activity it makes me focus on something other then symptoms. I have not experienced weakness or balance issues but more altered sensations in certain parts of my body that don't impair movement. Facial numbness is my current symptom with intermittent hand and feet tingling. I also want to mention I got a migraine with aura about 3 weeks ago and after this settled down I was symptom free for about 2.5 weeks until symptoms came back again.

In relation to activity levels I jog 2-3 times a week and I actually get relief from this - maybe it takes my mind off my symptoms?

I got myself into such a worried state that I went back to the GP and she put me on cipramil for health anxiety. I am a reasonable logical person but this has thrown me. I have now had a full blood count covering everything plus inflammatory markers and all came back clear. The GP did briefly discuss Fibromyalgia with me and I have now been referred to a rheumatologist. I am also back with my neurologist in March for a review.

My biggest fear at the moment is MS - even though it was ruled out on first MRI. My irrational brain working overdrive. I am sending myself crazy wondering what is going on and then thinking about anxiety as a cause (you can see the vicious cycle I am in!)

Now I am looking into anxiety as something that is causing symptoms but that is sending me down a completely different path! I have a young family and currently a director of a busy company which I love but this seems to be something I can't get to the bottom of. I am trying not to let it rule my life but in a nutshell I am extremely worried and scared.

I am not asking you guys to diagnose me but just a little insight into your experience and where you think I should go from here?

Many thanks for your support

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 2/14/2015 9:05 PM (GMT -6)   
Hi abundance,

You might Google CCSVI as a cause of migraines. It is also being considered as health issue that can exacerbate MS. The connection between CCSVI is controversial however I beleive it is more straight forward for migraine sufferers.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Veteran Member

Date Joined Sep 2014
Total Posts : 534
   Posted 2/19/2015 12:54 PM (GMT -6)   
Look at your diet. Certain foods can cause migraines.

New Member

Date Joined Feb 2015
Total Posts : 5
   Posted 2/20/2015 1:56 PM (GMT -6)   
You might also visit an Ear, Nose & Throat doc. Weird, I know.
My son was having migraines about 2x/month. Missed a ton of school. He was also diagnosed with Epilepsy, seizing once a month or so. The neurologist suggested we go to the ENT doc.
He found that the Adenoid lymph node behind the nose was so inflamed and enlarged to 4x the normal size that it was cutting off blood flow and oxygen flow to the brain. Our son had a simple surgery to remove the excessive growth, but still has Adenoid tissue.
He hasn't had a migraine in over a year, and his last seizure was last June 2014.
Worth investigation.
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