Posted 7/1/2015 11:28 PM (GMT -7)
Hello all. My name is Jennifer, and am new to this forum. I have MS, sick since 2008, and wasn't diagnosed until August 2013. It is very hard to diagnose, right from the start, my brain MRI showed 10 leisons on my brain, and although it was suspected, they could not definitively say it was MS. Well, my legs would go completely numb, I would just fall wherever I was. I had incontinence, and would spend 1-2 weeks in the hospital on intraveneous steroids until feeling came back, then they would send me to phsical therapy. Still, no answer. Dr after Dr after Dr, developed depression, anxiety, bleeding ulcers, I would go completely blind in my left eye, again month after month, year after year in the hospital more than home, which I ended up losing along with everything. Homeless and sick with no one knew. Finally, a neurologist that did something, a spinal tap. Came to my room a few hours later and said, well, it's definite, you have MS. No one ever even mentioned that! I was then sent to a very depressing nursing home for 7 months, just laying in bed, getting more and more depressed. I have a 10 year old son for goodness sake! Someone help me! I have had full custody of my son since my husband left and married his mistress! Now I have to hand over my son so he can have a nice normal life?! How devastating for both of us! I guess what I'm trying to tell you is, don' t give up, and research yourself! If I had, I truly believe it could have been found years before! Knock on wood, this is the first year, thus far that I have not been in the hospital! My longest stretch thus far!! I am having flare ups, but I do all I can to handle some of this on my own!! I have been homeless for over 2 years, and after huge fights and disappointments, and the power of prayers and God, I found tremendous help from St.Vincent De Paul, I just got disability, and finally moved into a small one bedroom apt, my son is absolutely exstatic, and although he still has to stay with my ex for school and such, he is with me 5 days/week since school is out and I have a car after 5 long years! Still a long road ahead, but if I made it through all this so far, I know and believe if you are determined, and really speak up to these Dr's, the answer will be found. I am so sorry to hear of your suffering, I really get it and of course I will be praying for you, but one thing I would say EVERY DAY: Someone out there is way worse off, and I pray for them! I wish I had more answers, but maybe something I said will help?
I do have a question, I have been sleeping for like 3 days straight without waking up for the last month, anyone else have this?
Prayers to all,