awaiting possible diagnosis of MS or small vessel ischemic disease

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irenawriter
New Member


Date Joined Mar 2015
Total Posts : 1
   Posted 3/19/2015 10:19 AM (GMT -6)   
I am 65 so I guess I am a "late bloomer" if I get an MS diagnosis. I had not told anyone of symptoms but I think they were starting to notice. My granddaughter would say: Gma you almost bumped into me, as my gait is not real graceful at times. But I have been a clutz and taken a few falls over the years so I dismissed it. Then other symptoms appeared like tingling and numbness in hands and face and then tremors have increased over the past year. Also spastic muscles in my abdomen and eyes and buttocks which is a new one. Brain fog happens occasionally when I can't get the word out I want to.

The MRI raises the question of both above possibilities and I see the neurosurgeon on Wednesday.
My primary dr said "MRI looks fine but I will send you to neuro anyway. Are you sure you aren't being hypervigilant?" The only thing I feel a bit vigilant on is going down steps.

Then I picked up the report and read it. I am really disappointed in my dr. I have known him 35 yrs. I worked with him the hospital as staff nurse! It took me over a year to even mention these symptoms. It takes a lot for me to complain about symptoms of anything. (except last year when my gallbladder full of stones had to go)
So now it's just a wait and see which I know may stretch out even longer until a true diagnosis.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3567
   Posted 3/19/2015 9:06 PM (GMT -6)   
Indeed you would be a late bloomer. It's not unheard of however!

I'm curious as to what was found on your MRI? Did it indicate lesions??

Try to be seen by an MS specialist neurologist.

I was diagnosed at 43. That's also on the late side. You deserve answers. Stay assertive!
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Hounds
Regular Member


Date Joined Jul 2014
Total Posts : 30
   Posted 3/20/2015 2:03 PM (GMT -6)   
As Gretchen mentioned, it isn't unheard of to be diagnosed late. I was diagnosed at 46, just last year.

I hope the neuro you see will help guide you and get you some answers.

Don't forget to be your own advocate, loudly, if necessary. wink

chloe24
Regular Member


Date Joined Apr 2014
Total Posts : 236
   Posted 3/20/2015 9:03 PM (GMT -6)   
irenawriter, another possibility could be
Lyme disease which is known
to mimic many illnesses.
Your symptoms are
very lyme-like,
You can visit the Lyme board
here and ask questions.

Everyone is very helpful
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