Nervy and scary symptoms, undiagnosed MS?

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New Member

Date Joined Mar 2015
Total Posts : 2
   Posted 3/21/2015 12:07 PM (GMT -6)   
Nov 2014: woke up with belly numbness from belly button to just at the public hair line. By nightfall of the same day belly from just under breasts to mid thighs on front side only were numb, including genitalia, not anus.

Mid December 2014: suddenly woke up to very heavy feeling legs. Then a week later I lost most feeling and couldn't control my knees causing me to fall when I stepped off a curb. My left knee didn't even try to stop me. Then around the first of January I was getting up, walking, driving every day, going window shopping. Loving life.

Late January 2015: I was suddenly struck with severe vertigo and a hyper and distorted sense of smell which prevented me from eating anything. Vomited a lot. That left me bedridden for 3 full weeks. I then was still bedridden due to muscle wasting.

Today: still bedridden but now have a rented wheelchair. Was dealing with severe muscle cramping in legs and feet but those have resolved. Have significant peripheral neuropathy in fingers and toes. Can barely use my hands, only pinky fingers for things like typing on my tablet, as I am right now.

I get tremors a lot. Kinda like I'm sitting in the snow without cold weather clothes on. It seems strong emotions bring it on. Yesterday I was calling around to get an answer about why I hadn't received my referral for my brain MRI yet. I was ticked to find out that almost 2 weeks after my doctor referred me the referral had not yet been touched and it needs to be sent to my insurance. That made me very angry.

Anyway. I wake up from sleep feeling feverish, hot kinda with a very reddish face. But after a short time of being out of bed it goes away and I get coldish.

I currently take 600mg of gabapentin 4 times a day, 2 pills extra strength Tylenol up to 4 times a day and 4mg tizanidine at night.

Does this sound like MS?

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 3/21/2015 10:54 PM (GMT -6)   
Your symptoms are terrifying. What has your doctor said??? Are you able to self care or have you been hospitalized??

I know you are waiting for an MRI. Have you had any other tests?? What has the doctor said about the fact that you now need a wheelchair?! What treatments have been tried?

We, of course, can't diagnose you. If it is MS, then you have a very progressive type.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Veteran Member

Date Joined Sep 2014
Total Posts : 534
   Posted 3/23/2015 8:50 AM (GMT -6)   
You might discuss the drugs you are taking with your doctor. Drugs can interact with each other and give side effects. If you take too much Tylenol it can destroy your liver. Check out the side effects of the drugs you are taking.

New Member

Date Joined Mar 2015
Total Posts : 2
   Posted 3/29/2015 2:21 PM (GMT -6)   
Even though your symptoms do mimic MS there are a lot of other possibilities out there that carry these same issues. Some as serious as a brain tumor or ALS to a vitamin D or B12 deficiency easy fix.

The main thing is to find yourself a good Neurologist preferably one that specializes in MS for the proper testing and diagnosis.

Good luck and I hope you can get the answers you need so that you can act accordingly.
Diagnosed w/MS 1994
~*I Hope You Dance*~

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 3/29/2015 3:34 PM (GMT -6)   
Hey Cherie,

Thank you for posting. I appreciate hearing from an experienced MSer. Your MS forum looks very cool. I've been lurking a bit.

This board is very quiet. It used to be much more active but in the last couple of years it has lost a lot of regular members. I hope you visit and post when you can.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

New Member

Date Joined Mar 2015
Total Posts : 2
   Posted 3/30/2015 12:08 AM (GMT -6)   
Just had brain MRI. Will probably be referred to neurologist. MRI shows large white area on bottom of occipital lobe on right side of brain. Some small white ghosty areas, and about 10 or so black dots. But I have no idea how to read an MRI.

I bought a walker and can walk, but clumsily, shuffling and slowly. So that is excellent! Nerve zings and pins and needles are especially bad for my arms and hands. Spasticity is still bad in fingers.

Now taking gabapentin 800mg 4 to 5 times a day. Need my first script of tramadol to be delivered. Had to do insurance mail order due to additives in the one brand the pharmacies here carry. I'm miserable.

I get so moody and crybabyish when I'm in a lot of pain. Ok g2g typing on tablet with pinky is exhausting.

Bad Mojo
Regular Member

Date Joined Aug 2010
Total Posts : 70
   Posted 3/30/2015 1:01 AM (GMT -6)   

Don't give up hope! I was bedridden for 3 months due to severe vertigo. Vomited every day...lost 40 lbs. My vertigo was so bad that if I got up to go #2 I would puke from being upright too long. I was absolutely miserable. That was 3 years ago. I still have a lot of dizziness but eventually your brain ,learns to tune it out. I can walk unassisted (as long as I'm on level ground) and I can drive if I need to.

Lying flat--or at least at a 45 degree angle always makes me feel better. Turning my head used to be terrible--it caused me to become super dizzy and would cause nausea. I went to a lot of physical therapy where they basically made me do things while turning my head. When the nausea set in I stopped and as soon as the nausea went away I would start again. It is meant to train your brain to ignore the dizziness. I hated doing it, but it definitely helped.

I've been taking gobs of gabapentin for years and honestly not sure if it helps or not. Mine was prescribed for my trigeminal neuralgia; a stinging sensation on the side of my face.

My dexterity has improved a lot too, but I still have full body numbness that makes doing some tasks difficult (like buttoning a shirt). It's the same feeling as when your hands get frozen from the cold and they lose their dexterity. I've had it so long I barely even notice it anymore.

Anyway, my point is don't despair. Things will eventually get better! Have they tried putting you on steroids? It helps some people recover, but it has never worked for me. Music was my savior while I was bedridden.

BTW, does your screen name about Ben and Jerry's ice cream? I have a dog named Mojo. And or the first 2 years I owned him, he behaved very badly!

Good luck!
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