could I have ms?

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20yrlimbo
New Member


Date Joined Apr 2015
Total Posts : 9
   Posted 4/5/2015 12:34 PM (GMT -6)   
I am searching for some opinions and answers so this will prob be a very long one. I have been stuck in limbo for years and have so many weird symtoms I'll try to keep it brief. I have been tested for every stomach issue, numerous trips to the ER. Many different family doctors and no one takes me seriously. Have seen a GI and a OBGYM and they can't visually find anything wrong. Now I am being referred to a neuro. Does this sound anything like MS?
At 17, weird stomach problems, feinting spell then rushed to ER, removed gallbladder but found nothing wrong. No answers. Through the years weird episodes of stomach issues, bloating, rib pain. Checked for many many things but no answers. By 26 new symptoms started, right leg pain causing limp, sciatic like pain in right leg, numb glutes, a developing a weakness in arms, they shake with the slightest effort. Constant itchy ears with no infection. Now I am 33 and I have symptoms on and off 24/7. I have had three episodes of extreme numbness where my hands and legs clenched up and I couldn't use them, then passed out with my blood pressure dropping very low.
Now i can't do much of anything. Reaching causes my arms to shake with weakness, climbing stairs causes pain and weakness. I get a weird pressure/pain across my left ribs, tops of feet burn for no reason. If I get too hot I feel so sick and feintish. The backs of my legs are so tight/painful can't bend over or anything. I get numbness and twinning along my legs as well as very itchy palms. I get head aches often and the pain in my shoulders and back are extreme. I now find that my jaw is clenching constantly. It's also getting hard to swollow certain foods, cauliflower is my enemy. 1 min of work with my hand causes pain like arthritis and weakness. I have had two episodes of "grey sight" lasting around two hours. I wake up three times a night now to use the bathroom, won't go into bowls tmi lol. My sinuses are driving me nuts, always dripping back and I can't swollow. I bump into things a lot, corners, chairs.. Ect. Always have dry eyes, and no appitite. There are prob more but want to keep it short lol. The extreme fatigue, can barley think, while body fatigue. Can anyone give me some advise, can this be MS?

Post Edited (20yrlimbo) : 4/5/2015 6:11:30 PM (GMT-6)


Gretchen1
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Date Joined Jan 2007
Total Posts : 3571
   Posted 4/6/2015 4:10 PM (GMT -6)   
Welcome to the board. I'm sorry you find yourself looking for answers for so long!!! You don't have any sort of diagnosis?

You certainly have a lot going on! What do your doctors say could be causing all your symptoms? Of course, we can't diagnose you. While some of your symptoms could be MS, you have lots that aren't associated with MS.

The place to start is with a good MS experienced neurologist. I hope your appointment is with an MS specialist. If after your neurological exam, your doctor wants to investigate further, then he/she will order a set of MRIs of your brain, neck and spine.

Have you considered Lyme disease? You may try posting your story there as well. You have some symptoms that could indicate a chronic infection. The Lyme board here is very friendly and helpful.

Keep us posted. Tell us how your neuro visit goes and what is said. I hope you get relief very soon.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

20yrlimbo
New Member


Date Joined Apr 2015
Total Posts : 9
   Posted 4/6/2015 5:32 PM (GMT -6)   
That's the problem, none of my "doctors" have done anything. I'm in Canada, my first dr actually left the clinic before my apts half the time, gave me a pain killer and sent me home. At the ER visits they say they can't diagnos in the ER. Second DR did nothing, she said she ordered tests but didn't. Finally my third dr. One I now have is sending me to the Nuro because of the numbness. Honestly I have read everyone of my symptom can be due to something. But MS seems to fit the bill. My nefew had a form of ms as a child and my uncle also has MS. I don't know how to get the DR.s to take me serious. And here we can not just pick and choose our DR or specialist.

20yrlimbo
New Member


Date Joined Apr 2015
Total Posts : 9
   Posted 4/6/2015 5:37 PM (GMT -6)   
Also... The wait time for an MRI here is 26weeks min. I'm frustrated that I'm loosing out on life because DRs don't care. I'm missing out on playing with my son, doing the things I love, can barely dance anymore. As a performer my dreams are being taken away. Anyone in Canada know how to make this go quicker?

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 4/6/2015 10:26 PM (GMT -6)   
Canada's health care has its good points and it's frustrating points. I beleive you don't have to pay for doctor's visits, treatments or meds. The bad part is you may have to wait to get what they consider to be non-emergency tests or treatment.

I had heard other concerns. It can be difficult to receive an MS diagnosis and subsequent treatment. MS treatments run from $3,000 to $10,000 a month (US dollars). Often, people in Canada are put in a "let's wait and watch" situation to avoid or delay costly treatment.

I'm guessing from the fact that you said you can't choose your doctors or specialists that you do not have supplemental insurance.

I know 26 weeks is a long time, but get on the wait list and see what happens.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

20yrlimbo
New Member


Date Joined Apr 2015
Total Posts : 9
   Posted 4/7/2015 6:26 AM (GMT -6)   
First I am on a wait list to see a neuro, then if he approves he will order the MRI and I wait for that. You can only see a specialist with a referral from your family dr. We do have to pay for our medications and I do have health insurance but still can not choose a dr.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 4/7/2015 8:19 AM (GMT -6)   
Yikes. That's rough.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

eat2bwell
Veteran Member


Date Joined Sep 2014
Total Posts : 534
   Posted 4/7/2015 6:12 PM (GMT -6)   
Anytime I hear of sinus problems I think of dairy. Dairy can cause sinus problems. Could be some of the foods you are eating are causing the problem. I would try an alkalizing diet and see if that makes a difference.

20yrlimbo
New Member


Date Joined Apr 2015
Total Posts : 9
   Posted 4/7/2015 7:19 PM (GMT -6)   
I have done every blood test in the book, and have experimented with many different diet types from gluten free to vegan. Nothing make a difference. I think I'm not doing well at describing things because there are so many issues. Good news is the neuro office called with a cancellation and I have an apt on Thursday!

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 4/7/2015 7:38 PM (GMT -6)   
Oh yay!!! Good luck and let us know how it goes.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

20yrlimbo
New Member


Date Joined Apr 2015
Total Posts : 9
   Posted 4/10/2015 1:16 PM (GMT -6)   
Well, it seemed at first the Dr dint want to take me seriously but after a talk, and him going over all the papers from my dr, I gave him any list of symtoms and discussed a few. He then did an exam, which he didn't give me any feed back on. There were things I really thought I could do and discovered I couldn't. The heal toe I was shaking and falling? I thought I could do this. I can do it with my knees bent.. Does that mean anything? Also was stoked I couldn't hop on one leg, can't even get off the floor, I don't this on a regular basis but it's suck an easy task we learn as kids. At one point he told me @ well your getting older" what? I'm 33! He changed a bit after the exam, but didn't give me much insight, all he said is he is referring me to an MRI to rule out MS. I never even mentioned ms it was the first thing he said to test for so I'm assuming he thinks it. It takes at least 8 weeks for the MRI, but have been waiting this long anyway. We talked about my husband as well as my job and that I'm a dance performer and I can't seem to do that anymore. I think maybe he was actually testing me but he also seemed like he didn't pay much attention. So I wait

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 4/10/2015 2:58 PM (GMT -6)   
At least you are getting an MRI. That will be very helpful. How did your reflex tests go?

I'm sorry you have to wait for that MRI. Can you get on a cancel list?
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

20yrlimbo
New Member


Date Joined Apr 2015
Total Posts : 9
   Posted 4/10/2015 5:02 PM (GMT -6)   
I have no idea how the reflex went, he didn't say anything. I don't know if it was bad or good.

20yrlimbo
New Member


Date Joined Apr 2015
Total Posts : 9
   Posted 4/10/2015 5:09 PM (GMT -6)   
Had really weird disturbing thing happen last night and today, will keep an eye on it, but last night in bed, my husband has his leg on my left calf, a little later he rolled over and for a long time after it felt like his leg was still there? Like "phantom" pains/pressure. I could still feel the weight of his leg long after it wasn't there. Then at my massage therapy today during the massage, when she put pressure on certin points of my right glute I could still feel the pressure long after her hand had moved away. Is this weird or what?

razinsosick
Regular Member


Date Joined Aug 2014
Total Posts : 62
   Posted 5/14/2015 12:20 PM (GMT -6)   
i have most of the symptoms that u have i live in Bangladesh i've been doing different tests for years still no solution i fear of MS too
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