Anyone willing to post your MRI report?

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AnnieInArizona
New Member


Date Joined Oct 2014
Total Posts : 11
   Posted 5/1/2015 2:44 PM (GMT -6)   
I just had MRIs done again (with and without contrast) and my MS has progressed to Secondary Progressive. After 25 years that is understandable and expected.

I'm trying to educate myself on the differences of various types of MS and for ME the best way to do it is to go line by line and research it, then I begin to understand the report as a whole.

Clearly, removing any identifying information, would anyone be open to sharing your MRI report? Regardless of which MS you have?

Thanks!

Chris_1234
Regular Member


Date Joined Mar 2015
Total Posts : 85
   Posted 5/4/2015 5:46 PM (GMT -6)   
Hi Annie,

Are your just looking for the imaging?

AnnieInArizona
New Member


Date Joined Oct 2014
Total Posts : 11
   Posted 5/6/2015 2:38 PM (GMT -6)   
I am doing my best to educate myself, I prefer imaging and written reports but I will settle for anything and everything.

My MS is secondary progressive. I am in desperate need to know what that means. My way of understanding is researching every single term to a neurotic level. I am okay with neurotic. I just need to know my future, that's all.

Chris_1234
Regular Member


Date Joined Mar 2015
Total Posts : 85
   Posted 5/11/2015 8:46 PM (GMT -6)   
VIEW IMAGE

VIEW IMAGE

VIEW IMAGE

All three images are T2. The first one was my first MRI after my first symptoms in August 2014. No Contrast

The 2 images that follow are from a month later..this time with contrast.

Post Edited (Chris_1234) : 5/11/2015 8:52:05 PM (GMT-6)


AnnieInArizona
New Member


Date Joined Oct 2014
Total Posts : 11
   Posted 5/11/2015 9:04 PM (GMT -6)   
Thank you SO much, Chris~

Chris_1234
Regular Member


Date Joined Mar 2015
Total Posts : 85
   Posted 5/12/2015 11:38 AM (GMT -6)   
I just had another mri with and without contrast done on April 22. As soon as i get my hands on the images i'll post them as well.

AnnieInArizona
New Member


Date Joined Oct 2014
Total Posts : 11
   Posted 5/12/2015 11:44 AM (GMT -6)   
Thank you!!!

Chris_1234
Regular Member


Date Joined Mar 2015
Total Posts : 85
   Posted 5/25/2015 2:30 PM (GMT -6)   
Well here it is...my latest MRI

It would appear i would be a candidate for Tumefactive MS


Enjoy the pics turn

s16.postimg.org/r9f0vzjz9/AXT1_Im21.jpg
VIEW IMAGE
VIEW IMAGE
VIEW IMAGE
VIEW IMAGE
VIEW IMAGE
VIEW IMAGE
VIEW IMAGE
VIEW IMAGE
VIEW IMAGE
VIEW IMAGE
VIEW IMAGE
VIEW IMAGE
I'm curious to know your thoughts on this, Gretchen?

It should also be noted that this MRI was ordered as a baseline before i commenced treatment of Copaxone.

AnnieInArizona
New Member


Date Joined Oct 2014
Total Posts : 11
   Posted 5/25/2015 4:41 PM (GMT -6)   
Chris--

Thank you thank you thank you.

I am trying soooo hard to learn to read these, it's a challenge.

I'm getting a bit creeped out. While I am a nurse by trade, they did not teach us to read MRIs. ;o) I can no longer depend on my hands, sometimes they work and sometimes they don't. I can no longer depend on my legs, maybe 2-3 days a month it is an issue. NOW, my speech is being affected. I can feel the slurs, and I can hear them, I cannot correct them. What am I going to do for a job? I am running out of options.

I had the most interesting medical appt a couple of weeks ago. It was with a pain management specialist. After I (finally) made it bloody clear I am not the least bit interested in narcotics, the dude and I had a really good talk. I think he thought I was there for my "fix" and when he fully understood I refuse narcotics (that is the beginning of the end) we really talked.

I am not thrilled with my future, but finally I think it will be doable. I'm scared crapless of my career options, that is a huge issue. I now believe my pain issues can be managed. But my job? I'm really scared. I don't have savings left anymore, it's gone due to flares. That is an issue. I guess I will just take this one day at a time. Right?

Thank you for the educational scans, I really need this right now.

Annie

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3556
   Posted 5/25/2015 5:13 PM (GMT -6)   
Holy cow, Chris!!!! That's quite a collection! And some are really big! Have you been formally diagnosed with tumefactive MS? That's really rare! You must be an over-achiever. How long have you been on Copaxone ?
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Chris_1234
Regular Member


Date Joined Mar 2015
Total Posts : 85
   Posted 5/25/2015 7:18 PM (GMT -6)   
Annie, I'm sorry to hear of what you're going through, but please take some comfort in knowing you are not alone and that there is a lot of good help and support out there.

Not too long ago i would worry that what would happen if i had a relapse? What would i tell my employer? Would i be able to make an income so i could support my family? All good questions that anyone with any chronic disease i'm sure would be asking themselves. But then one day I woke up and there was this calm. I came to the realization that worrying about it will not change the future and i came to the conclusion that i'll deal with it if and when that time comes because worrying in one form or another will eventually consume you. What is particularly hard for me is that there aren't any answers, I'm accepting of the disease but i'm not accepting of not having answers to my questions. So in the mean time, social media, lectures/seminars and an overall gain of knowledge is my fix. So you are on the right track ONE DAY AT THE TIME.

Try getting involved with your local chapter of the MS society. Its nice to talk to people face to face that share the same disease as well as the MS Society can provide you with some great information about the disease, financial help and will be there for you when you need them to be.

https://beta.mssociety.ca/
http://www.nationalmssociety.org/
http://www.mssociety.org.uk/

Gretchen,

I made the mistake of picking my MRI disc up at the hospital two weeks ago instead of just letting them mail it to my neuro. Then i started to contemplate opening the CD to view the images. AND i opened the cd..lol You could probably imagine what was going through my mind when i saw that big sucker. I wish my wife was at home to have seen what i looked like because i probably turned 50 shades of white. My grandmother had Leukemia and my Mother had melanoma (she still alive and well thank God) First thing i thought was HAVE I BEEN MISDIAGNOSED? Is this a tumor?? smhair

So after composing myself i called my Neurologist and bumped my appointment sate up form May 29 to the 22nd and emailed her the images.

So i took the 2.5 hour drive to my Neurologist on the 22nd. She reviewed the images right in front of me from the CD itself (images on the cd are a lot better quality and you can actively change the picture contrast). She reassured me that it wasn't any other condition that I had brought up to her (lyme, hughes syndrome..ectect) But she did say it is fairly hard to differentiate between CNS Lyphoma and MS but reassured me that it is in fact MS...concurring with the radiologist. She made note that Lymphoma pushes on the brain and has fluid that can be seen by a trained eye around the lesion itself. As well, in my smaller lesions i have what is known as dawsons fingers, which describes the shape of the lesion that is only found in MS. Not to mention i am not symptomatic of someone who would be ill with CNS lymphoma.

So then i asked her about Tumefactive MS and she wouldnt necessarily say if I had it. From my understanding its any MS lesion that is greater than 2cm..so i think i pretty much answered my own question. She did say, though, that most people with Tumefactive MS tend to respond better to treatment then to people who don't have it. She also did formally diagnose me with RRMS. Since it was a different Neurologist who made the initial diagnoses of MS, the only thing she has sent me for was some more blood work to see if there are any o-bands in my blood serum (she could not confirm whether my previous neuro had done this) - which i went and did today.

The good news. No lesions on my theocratic and cervical spine and the MRI showed no active lesions when it did it's imaging with contrast.

I have great faith in my Neurologist who specializes in Multiple Sclerosis. She worked along side Dr Freedman http://www.ohri.ca/profile/msfreedman

and was directly involved in the Canadian Bone Marrow Transplant Study. Alsohttp://www.ohri.ca/newsroom/11092004.asp

She also spent many years working at the MS Clinic at St Mikes under Dr Selchen, head of neurology at St Michaels Hospital in Toronto
http://www.stmichaelshospital.com/neuroscience/profile.php?id=selchen

I consider her to be one of the most knowledgeable Doctors in Canada about this disease She takes the time to speak with her patients about how research is progressing, current and up to date hypothesis about how they think the disease may start and new treatments that are not yet on the market.

Tomorrow will be my 30th injection of Copaxone. I commenced treatment approximately 2 weeks after this last MRI. I will be going back to see the Doc on Aug 21 for a follow up at which time she will make a requisition for anther MRI to see how well the Galtiramer Acetate is working.

ALSO, i have had chronic ear pressure, headaches, sinus pain, an abnormal amount of mucous and an on again off again unsteadiness since Sept 2014. After having 4 Neuros tell me this isn't a symptom of MS i finally had my GP make a referral to an ENT and my appointment for that was earlier today. He chalked up my symptoms to being TMJ http://en.wikipedia.org/wiki/Temporomandibular_joint_dysfunction redface

whew..i think thats it for now

AnnieInArizona
New Member


Date Joined Oct 2014
Total Posts : 11
   Posted 5/25/2015 7:42 PM (GMT -6)   
I am having a moment, tomorrow I will be fine. But THIS moment I am in a bit of a panic. I find myself obsessing over the MRIs of others in an attempt to learn. I need to learn how to read the darn things.

Yesterday it was my hands, today it is my legs, tomorrow it is my speech. I am divorced, it is me and me only. Will I be homeless when I can't do my job anymore? I can only break it down so much. No hands, no legs.......... okay, I can speak my way through my job. Now my speech is affected.

It's getting creepy as all get out!

Chris_1234
Regular Member


Date Joined Mar 2015
Total Posts : 85
   Posted 5/25/2015 7:47 PM (GMT -6)   
Do yourself a favor and hit the power button on your computer. I know it's easier said then done.. but Take a breather and give it a break for tonight and start fresh once you are relaxed. Go get lost in your favorite TV show/book. THATS AN ORDER. lol

AnnieInArizona
New Member


Date Joined Oct 2014
Total Posts : 11
   Posted 5/25/2015 8:08 PM (GMT -6)   
I'm taking that advice. Thank you!

Chris_1234
Regular Member


Date Joined Mar 2015
Total Posts : 85
   Posted 6/3/2015 11:44 AM (GMT -6)   
https://www.youtube.com/watch?v=xWFQ0eAGv24

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3556
   Posted 6/4/2015 7:07 AM (GMT -6)   
This is a great link. Thanks, Chris. I enjoyed watching it.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Chris_1234
Regular Member


Date Joined Mar 2015
Total Posts : 85
   Posted 6/9/2015 4:16 PM (GMT -6)   
I finally got my paws on the radiologists report.

"There has been significant interval enlargement of the vertically oriented T2 hyperintense demyelinating lesion extending from the left thalamus superiorly into the white matter of the left centrum simiovale. The lesions previously measures 0.8x0.9cm in axial plane and now measures 2.7x2.5cm in axial plans. Conversly, a lesions in the right centrum semiovale has decreased in size from 1.7x1.8cm on the previous study to 0.6x1.0cm in axial plane. Multiple other lesions remain present and are not significantly changed in the interval. These lesions are located in the juxtacortical and periventricular white matter of the supratentorial brain.

There is no evidence of lesions involving the infratentorial brain.


There is no abnormal restricted diffusion. There is no T1 black holes, nor do any of the demyelinating lesions demonstrate evidence of significant enhancement.
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