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Colin121349
Regular Member


Date Joined May 2015
Total Posts : 37
   Posted 5/1/2015 8:12 PM (GMT -6)   
Hey Everyone Id like to tell you about my unbearable symptoms I've been dealing with for 2 years. I'm not sure if it's MS or untreated Lyme but Lyme but it came up negative on the standard test. It started with a skin rash on my leg but I refused to draw attention to it. Then came vision problems chronic fatigue and severe neck pain (meningitis) All the joints in my body crack I have numbness tingling down my arms into my hands, my body overheats frequently, and depression due to my illness took over. I forget to mention the combination of anxiety/panic attack/chest pain POTS The only Lyme symptom I really don't have is Arthritis which I found unusual? After two years it's attached my brain and I have extreme brain fog/speech problems/ poor memory you name it. I'm leaving out a bunch of symptoms but these are the main ones. I've narrowed it down to Lyme or MS? Any help would be great at this point Thanks.
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BarnGurl
Veteran Member


Date Joined Sep 2013
Total Posts : 1426
   Posted 5/2/2015 11:05 AM (GMT -6)   
Hi Colin,

I had almost identical symptoms and a negative test. I found an excellent LLMD and improved immediately. Lyme untreated can develop into MS like symptoms. You need to find a llmd asap. Good luck and I know you will improve with treatment.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 5/3/2015 8:43 AM (GMT -6)   
Colin,

What have doctors said about your symptoms? A visit with an MS specialist neurologist may help. A thorough neurlogical exam can give you lots of information.

Also, cracking joints isn't often associated with MS. Be sure to post on the Lyme board as well since you strongly suspect Lyme.

Good luck and keep us posted.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

HollyAZ
Regular Member


Date Joined May 2015
Total Posts : 22
   Posted 5/20/2015 11:22 AM (GMT -6)   
Hello I have been reading peoples story's and questions on this for a month now.

I have SO MANY of your symptoms. I'm a 48 year old and my story is: ( VERY LONG Sorry )

Since 2004 I have had several issues, 1st was Severe sleep apnea Dx, then Blood clots in both legs in 2005, then dx'd with Hypo thyroid, in 05, I was feeling pretty good for about a two year span from "07" to "09"
except constant issues with my legs. feeling very tired and swelling.

In "09" I started having more issues, when I moved from MI to AZ. I started to get sick a lot and had kidney stones, then 2010 I started having a lot of back pain and left side pain on and off, So i ignored it until I doubled over. in 2011 I had a 13" colon removal from severe Diverticulitis! then 2012 I had severe cramping and BAD menstrual, so I had to have a Full Hysterectomy ( Da Vinci robot ) less aggressive method ?

so I was to go home the following day Well that did not happen, turns out the DR. perforated my Bowel.

so I was on deaths door for 3 weeks. respiratory failure, you name it. well fast forward.

My Dad's mom died from MS back in the 50's ? any way, I have read it could be hereditary, also could carry the gene and it could lye dormant but a huge trauma to your body can activate it.

since 2012 my issues really started. Major fatigue, respiratory issues, Numbness in hands, legs, Chronic pain, all over, it feels like my body is in a Warp. nerves feel like there in over drive all day. vertigo, abnormal gait, blurred vision, shooting pain, Dx'd with fibromyalgia. since October 2014 I started having tremors, now really bad, I have good days but mostly bad. it effects my voice, My Primary said she thought it was PD, but my Neuro said NO, I've had EMG testing, no damages to nerves or muscle, I had a MRI and Dr. said he seen white spots, but he thinks. it's from the Fibro. next week I do a Lumbar . so any help or anyone who has MS did you or do you have this issue ????

P.S. I know I missed a lot of my issue's but gave the Primary info. LOL

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 5/20/2015 6:56 PM (GMT -6)   
Hi there. I'm sorry you find yourself searching for answers. I think you should seek a second opinion. Find an MS specialist. Bring your MRI results.

According to research, MS is somewhat hereditary. People who have siblings or a parent are at a slightly higher risk.

Good luck!
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

HollyAZ
Regular Member


Date Joined May 2015
Total Posts : 22
   Posted 5/20/2015 7:07 PM (GMT -6)   
Hello Gretchen1,

Thank you for a response, I'm new as you know, but as I said I have so many issues that mimic MS,
I do have a new Nuero. I see him on the 9th , when my primary found out he said he thought it was my Fibro. she immediately set a new Dr. and yes there getting my MRI from the old one.

I have done A lot of researching . I'm curious if you don't mind can you give me your History on your case?
I informed my Dr. that I don't want to be one of the victims, waiting Years to get a Diagnoses.

Greatly Appreciate any help. Thank you.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 5/20/2015 9:58 PM (GMT -6)   
I had a bad bout of vertigo. I thought I had an ear infection. I saw my primary doctor and got antibiotics. It didn't get better. Vertigo was my only symptom. It progressed until three weeks later, I could no longer walk without help. I was hospitalized for 4 days.

While on the hospital, I was given a brain MRI. This showed one lesion. I was diagnosed with a cerebellar stroke. I was sent home and told to call 911 if I had a resumption of symptoms. My vertigo was beginning to resolve. I had a neurologist assigned to me.

5 weeks later I woke vomitting due to vertigo. I went back to the hospital. They ran another MRI. Another spot was found.

My neurologist recinded the stroke diagnsosis and sent me to UCLA MS center for an evaluation. I had a lumbar puncture, evoked potentials, a spinal MRI and a thorough neurological exam.

My spinal MRI showed another lesion. I failed evoked potentials, I had abnormal reflex responses during my neurological exam and I had oligoclonal bands show up after the lumbar puncture.

I was diagnosed about 7 weeks after my initial symptoms. I was put on copaxone (a disease modifying daily injection) about a month later.

I have had several flares since. I have sensory issues in my legs. I have balance issues. I have bowel and bladder issues. I have vision problems. And I still have chronic vertigo. My symptoms are considered mild. I have adapted. I work full time and have a full and happy life. I've learned to managed with all of my issues with the help of physical therapy and with the help of my family.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

HollyAZ
Regular Member


Date Joined May 2015
Total Posts : 22
   Posted 5/20/2015 10:55 PM (GMT -6)   
Oh wow!
Interesting, I was just telling my Therapist today that in November I had bad vertigo for about 2 weeks.
I was in MI visiting my Daughter, then I also had a bad ear ache, and was put on antibiotic, and a steroid ear drop for inflammation. I still have an ear ache, in my left ear, and my right ear i get a ringing pitch.

I have found that the tremors seem to get worse when I over do it, or hot , even a Luke warm shower will make it worse.

I know a lot of stuff can mimic MS so it's hard to say, I really appreciate you telling me your story. I
am glad that you were diagnosed so quickly, as you know some can go Years before getting any answer.

I'm glad to hear that you have a Wonderful support team too. I hope to keep in touch and Bless you for a Helping hand. :)
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