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ragulou
New Member


Date Joined Mar 2015
Total Posts : 4
   Posted 5/16/2015 11:00 PM (GMT -6)   
Anyone have this painful condition.

ragulou
New Member


Date Joined Mar 2015
Total Posts : 4
   Posted 5/16/2015 11:05 PM (GMT -6)   
Trigeminal neuralgia from MS

Bad Mojo
Regular Member


Date Joined Aug 2010
Total Posts : 70
   Posted 5/17/2015 2:35 AM (GMT -6)   
Yes, I have it. Mine is there full time--which I think is a blessing. Because it has been constant for the last 4 years, my brain has learned to block it out most of the time. Sometimes it gets worse--like if I get overheated or stressed. Wind bothers it too. The best thing I've found to do is to find something to get your mind off it. I take gabapentin but it doesn't seem to help much.

ragulou
New Member


Date Joined Mar 2015
Total Posts : 4
   Posted 5/17/2015 11:14 PM (GMT -6)   
My wife is 71 been in much pain for last 4 yrs. This last 40 days have been extremely bad so had a Glycerol rhizotomy done on the 9th of April which didn't work so they did it again on the 7th 0f May and it didn't work either. We appealed to another Dr. and he did an emergency Micro Vascular Decompression. This seems to be working as there is longer any facial pain, but much pain from the surgery. This was done on the 15th of May. So she is fighting this pain now. I hope this pain subsides because it is as bad as the Trigeminal Pain.

Bad Mojo
Regular Member


Date Joined Aug 2010
Total Posts : 70
   Posted 5/18/2015 12:33 AM (GMT -6)   
I truly hope your wife finds relief. The fact that she was considered healthy enough for this surgery says a lot. I'm 48 and that procedure sounds too scary for me. I can manage the TN pain now--I imagine once mine gets as bad as your wife's, I may change my mind.

I'm sure the pain from the surgery will subside soon and hopefully she will be free of the TN.
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