Visual Disturbances + more

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

sickgirl87
Regular Member


Date Joined May 2015
Total Posts : 21
   Posted 5/23/2015 2:32 AM (GMT -6)   
Hi all, new here and first post. I have been unwell the last 8 years, gradually becoming more sick over the last 2. I have become almost bed bound because my symptoms are very dibilitating. I have had a whole host of tests from doctors and nothing is ever found. My symptoms are many but the most troublesome are : extreme dizziness/lighthead (can no longer drive, lying flat no longer relieves), extreme brain fog (can't think, process), neck tightness/pain, benign pvcs, numb lips, legs (from knee to ankle), tingling fingers and toes, ortho static issues, low blood pressure, anxiety attacks (from symptoms), strange mental sensations hard to describe, and lots of visual problems. I'm attaching picture I made to show what I'm experiencing visually. I see tons of electric blue or silver dots throughout the day. They look as bright as the christmas lights in the photo but can be blue or silver. Happens at any time: sitting, standing, eyes closed, dark, light, indoors, outside, etc. Does anyone else see these dots with this much frequency? Like I've said, have had heart tests, MR I (no contrSt), blood work, eye tests, etc....all negative. I feel like I'm slowly dying. Maybe this unusual symptom could help with diagnosis.? Someone out there has to have experienced this also. Dr's don't know what's going on or don't believe me. I'm not anxious or depressed, I know there's something not right going on in my body-I don't know what it is. Thanks for listening and for your help in advance. VIEW IMAGE

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 5/23/2015 10:04 AM (GMT -6)   
Hi Sickgirl,

I am sorry you are suffering and for so long too! Your symptoms are horrific! It must be very frustrating to have no diagnosis or relief. Do you see the dots all of the time? No one can explain the extreme dizziness that keeps you in bed?

I cannot imagine. I don't have any real advice. I know you have had an MRI that was clean. It doesn't need contrasting agent to find lesions. My lesions were found without contrast. Contrast just helps to indicate new/active lesions.

You could always take tour test results to an MS specialist. Have you considered Lyme Disease? You may want to post on that board and see what kind of feed back you receive.

I hope you find answers real soon! Keep us posted.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

sickgirl87
Regular Member


Date Joined May 2015
Total Posts : 21
   Posted 5/23/2015 2:44 PM (GMT -6)   
Thanks for the kind response. Yes I see the dots all the time. And no, my doctor has not yet been able to identify the cause of my dizziness. It has just recently (over the last 2 months) gotten so bad that I can not drive or sit/stand up for very long. I spend most of my time in bed because of the lightheadedness. Sometimes I will try to push myself, because I have kids to tend to or dishes to do. I end up feeling very fried, pupils get huge, and I HAVE to lay down or I feel as if I will lose consciousness. It is pretty awful. I will try to post in the Lyme Board-I have wondered about that. Thank you again.

sherry715
New Member


Date Joined May 2015
Total Posts : 1
   Posted 5/30/2015 6:36 AM (GMT -6)   
I'm no doctor, but I am a nurse who has been battling MS for almost 18 years. I really don't know what to make of your symptoms, but part of me wants to say MS. If I think back, I believe my MS symptoms started in my late 20s; I was diagnosed when I was 40. I too experienced visual disturbances initially which prompted an MRI of my brain and C-spine. The lesions were found with contrast. Three years later I experienced the dizziness which lasted for nine (9) months! I had all kinds of tests performed to make sure it wasn't an inner ear problem. It was awful - I was always dizzy and sick to my stomach! Now, I am experiencing something called "MS hug" which feels like someone is squeezing my rib cage area on the right side. The left side isn't really affected. It is more annoying than anything. As for you, I think you need to go to a neurologist and get a new MRI done with contrast. It will be compared to your last MRI. I wish you the best of luck and hope you find an answer to your mystery symptoms. Some people call MS "mystery sickness"!

voodoodoll
Regular Member


Date Joined Mar 2014
Total Posts : 49
   Posted 6/1/2015 1:28 PM (GMT -6)   
Have you been to an eye specialist for the dots? I have pars planitis in both eyes (caused from the MS). I see a flash of white light in the outer corner of my left eye constantly---the lining of my eye is trying to pull free--the retinal specialist has lasered it in several spots to try and keep it holding tight, but may still pull free. I also have the dizziness/floating feeling off & on--normally after walking a good distance. I think it gets worse just as my ms numbness does with exercise. I have several floaters in both eyes that bother me off & on...usually on cloudy days I feel like I can see them all. Good luck to you!!!
***********************************
Diagnosed with MS Feb 2014
Copaxone injections Mar 2014
Pars planitis both eyes Nov 2014

sickgirl87
Regular Member


Date Joined May 2015
Total Posts : 21
   Posted Yesterday 3:51 PM (GMT -6)   
I'm seeing a new Doctor Monday for a different opinion and new set of eyes on things. I will mention my concerns and hopefully we can get to the bottom of things. Yes, I have seen an eye doctor and he said my eyes looked fine. Thanks everyone!

spiritspinner
Regular Member


Date Joined Jun 2015
Total Posts : 71
   Posted 7/4/2015 5:18 PM (GMT -6)   
I just happened to stumble on this thread and I am glad I did. I realize it' a few weeks old -- but I have visual disturbances like you --- Bright lights like Christmas lights is a perfect description -- except the ones I see are dark purple / indigo type colour. In the "New Age" spirituality world - it is said those are your angels and spirit guides. I'm gonna go with that, because doctors have already labeled me crazy lol :) ;)

Jokes aside, I am sorry for what you are going through. I have GERD and anxiety which has turned my world upside down. I've also had nagging thoughts about having MS because for 2 years, long before my GERD and anxiety diagnosis, I have experienced numbness in my legs, my finger tips and arms (usually my left side), but just recently started feeling the right side. I also get lots of tension headaches too. It's freaking me out.

I've pushed for an MRI -- although my doctor thinks I've created this with my anxiety -- she finally ordered the MRI (which I am still waiting to do) when I went to my massage therapist and she touched my spine and half my body went numb.

Anyway, please keep us posted. I wish you luck in finding your answers and wellness overall.

sickgirl87
Regular Member


Date Joined May 2015
Total Posts : 21
   Posted 7/12/2015 10:44 PM (GMT -6)   
Im waiting on Lyme, west nile, and lupus tests to come back. Will be having MRI soon. Will keep you all posted. I would like to think the lights are angels! :) but find that hard to believe. They are worse after I eat and I can reproduce them sometimes by rubbing my eyes. I think they have something to do with pressure or inflammation on optic nerve or eyes. Just a guess. I'll know more soon!

sickgirl87
Regular Member


Date Joined May 2015
Total Posts : 21
   Posted 7/23/2015 12:54 PM (GMT -6)   
UPDATE: My Lyme Western blot came back negative. Still going in for an MRI the 28th to double check for MS. Turns out I have intestinal parasites!!, H. Pylori infection, and beginning stages of rheumatoid arthritis. The dr thinks the parasites are causing the inflammation and that once they're gone, the joint pain will go away as well. She was like, "God knows how long you've had these things in you making you sick!?! " I recommend everyone get checked for parasites! Do some reading on them. They cause a whole range of problems and they think they affect up to 90% of Americans. Most Drs don't think to check for them and tests can be unreliable. I start Flagyl today for 20 days and then we will see how things are. If after 20 days they're still there, will try Vermox I believe is what she said. Just thought I'd let everyone know. I've been so unwell and hopeless for so long. I am relieved that I have an answer to why I've been so sick!

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 7/23/2015 5:45 PM (GMT -6)   
I'm glad you have some answers!!! Yay!!! Something to treat! I believe H. Pylori is a bacterial infection rather than a parasite. This bacteria infects the digestive system. It can cause all kinds of issues. You should feel much better once this has been treated!!!

Good luck! Keep us posted.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

sickgirl87
Regular Member


Date Joined May 2015
Total Posts : 21
   Posted 7/24/2015 3:07 PM (GMT -6)   
I have h pylori as well as intestinal worms. Lots of them. Have been evacuating hundreds since starting antiparasitic.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 7/24/2015 7:52 PM (GMT -6)   
Oh wow. Seems like you are bound to feel better!
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

sickgirl87
Regular Member


Date Joined May 2015
Total Posts : 21
   Posted 7/24/2015 9:03 PM (GMT -6)   
Yes! Feeling tons better already and I'm only on the second day of medication.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 7/25/2015 8:31 AM (GMT -6)   
That's fantastic!!! I'm so glad and very happy for you!
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

razinsosick
Regular Member


Date Joined Aug 2014
Total Posts : 62
   Posted 8/1/2015 11:50 PM (GMT -6)   
congratulations
well well u know what I've never felt well a bit the environment seems to be against me all the time. I take no medication at all
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, June 21, 2018 12:38 AM (GMT -6)
There are a total of 2,974,029 posts in 326,240 threads.
View Active Threads


Who's Online
This forum has 161196 registered members. Please welcome our newest member, mcvayscarlet.
270 Guest(s), 3 Registered Member(s) are currently online.  Details
The Dude Abides, Girlie, Mark FW