doctor didn't tell me

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Debdidit
New Member


Date Joined Jan 2014
Total Posts : 18
   Posted 6/23/2015 7:56 PM (GMT -6)   
Found out a couple weeks ago during some pre-op test for an unrelated surgery that I had some lung nodules that were suspicious from back in Jan/Feb, my pcm never mentioned them if it wasn't for the new pre op would never had them checked now while getting ready for the vats procedure and looking at my records I read that I have sclerosis of the lower back / pelvic area , I thought it was just arthritis, and again pcm didn't tell me. Does anyone know if this normal practice.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 6/24/2015 8:16 AM (GMT -6)   
I would ask your doctor why these things were never mentioned. Sclerosis of the spine is a very different diagnosis than multiple sclerosis. Sclerosis means scar or thickening. It can also mean inflammation. Sclerosis of the spine is then a thickened, inflamed back/spine. You may want to make an appointment with a good rheumatologist.

Best of luck on your VATS. I hope your lung nodules turn out to be something benign and easily treatable.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Debdidit
New Member


Date Joined Jan 2014
Total Posts : 18
   Posted 6/24/2015 9:34 AM (GMT -6)   
Ok thank you, in a way that makes me feel better

tracyne91
New Member


Date Joined Jun 2015
Total Posts : 13
   Posted 7/22/2015 2:14 PM (GMT -6)   
When I get my surgical reports I see these things, too. I'm not diagnosed MS, but they won't rule it out yet. However, they tell me my tests are normal and there are always little things in them. One doctor told me they are nothing to worry about and most people have them in their bodies. Like I have a nodule in my left lung that is stable one report said. A cyst on a kidney. 2 hemangiomas? in my liver. No one ever mentions it. I have to read in my reports for myself. That's why I always get a copy of my reports. You never know if they things will add up to something later. Especially when you have mystery symptoms like mine.

Debdidit
New Member


Date Joined Jan 2014
Total Posts : 18
   Posted 7/22/2015 3:24 PM (GMT -6)   
I will start getting copies of all my test, will also begin looking for a new doctor because as it turned out the nodule she decided not to monitor turned out to be cancer, so I sit here healing from the lobectomy still angry cause if not for the pre op they would never have found it and I wonder how big it would have been. But on the bright side it is not breast related ,they caught it while the tumor was small so right now there is no need for chemo or radiation

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1197
   Posted 9/29/2015 9:27 PM (GMT -6)   
When I had a ct scan 1 1/2 years ago, the radiologist gave results for a liver scan and put a note on my medical record, that. He saw atherosclerosis. None of my Drs caught it. I did s year later. I'm still upset, and read my records regularly

HMOs really suck

Debdidit
New Member


Date Joined Jan 2014
Total Posts : 18
   Posted 10/4/2015 2:45 AM (GMT -6)   
May I ask what the doctors are doing for you?
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