Circling around (some sort of) diagnosis

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espressobean
New Member


Date Joined Aug 2015
Total Posts : 2
   Posted 8/4/2015 1:35 PM (GMT -6)   
Hi all,

I am a 26 yo female who has developed moderate drop foot and general left-sided weakness since last year. I finally went to the doc when one evening it felt as if I could barely move my left leg due to this sudden attack of severe heaviness/weakness in the limb. No pain, just completely bizarre. I had a brain and cervical MRI at the beginning of this saga, both of which returned (reasonably -- more info on that) normal. Saw a few docs who confirmed the weakness and an EMG was indicated, but then I then promptly ran out of insurance, which can not be remedied for a few more months at least. I was able to visit a chiro briefly, as this seemed better than nothing. X-rays show an extra lumbar vertebra and some spondylosis.

I recently was able to see an actual spinal doc out of pocket today, and the left-sided weakness was confirmed. I should mention that I have had transient feelings of tingling on my face and a huge numb patch on my left arm that was there for a few months before disappearing, as well as buzzing in my left hand and fingers in general. I also can't move my left pinky toe, but that's not exactly concerning.

This office is doing a HUGE discount for me so I can finally get an EMG in a few weeks. However, they told me that if the EMG is normal, they want to refer me to a neuro, as my brain MRI did have some "rare white matter plaques/lesions possibly indicative of demylination or ischemic events." (Not a direct quote, but it's basically what the nurse read to me today). Now, these are small and I suppose there weren't a whole lot of them, so I guess that's why it was brushed off initially, months ago? :/

This MRI was taken in March. I was basically told I may have MS or something along those lines still. Any opinions? I guess I have lesions, but not the ones you usually see, or something. I'm just flippin' tired of going around in circles!

Post Edited (espressobean) : 8/4/2015 12:49:11 PM (GMT-6)


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 8/4/2015 8:16 PM (GMT -6)   
Hi bean,

I'm sorry you are in limbo here. If money is limited, I'd be asking for an "evoked potentials" test rather than an EMG. EMGs are not use to diagnose MS. EMGs are for testing the peripheral nerve system and not the central nervous system.

You also need to get a printed copy of your MRI report as well as a cd copy. This will make second opinions much easier.

Lesions, even small ones, are caused by something. Ask doctors to investigate reasons for these. You have real reasons for concerns. Good luck in your search.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

espressobean
New Member


Date Joined Aug 2015
Total Posts : 2
   Posted 8/4/2015 8:55 PM (GMT -6)   
Thank you for your reply, Gretchen. I'm just super frustrated and wish I had an answer so I could move forward. I definitely will now ask for a copy of the MRI report of my own, and will bring up the evoked potentials test. :)

Post Edited (espressobean) : 8/4/2015 8:00:25 PM (GMT-6)

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