I am terrified

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angelboy08
New Member


Date Joined Aug 2015
Total Posts : 5
   Posted 8/5/2015 1:54 AM (GMT -6)   
I am absolutly terrified,
I have been being treated for chronic neck and back pain been through all the procedures ssid,epidural,faucet blocks,radiofrequency ablation the whole nine yards. 3 yrs ago i suffered from chronic fatiuge so bad i fell asleep behind the wheel of my truck and had a horrible accident. i healed up niceley on the outside but on the inside im a wreck.Just recently i have been being treated for severe headaches neck and back pain but i have other concerns up until i left this dr and got a new one because i was being swept under the rug" you are depressed get a job and you will feel better. your symptoms dont make any scense"

The new Dr is very concerned I have a history recently of severe headaches fatigue what i call eye seizures falls slurred speech,heaviness in my legs burning sensation in my back, numbness in my feet and swollen joints.All of which come and go as they please Upon her first exam with me she finds that i have diminished reflexes in my ankles and absolutely none in my knees!!!

She has scheduled me to see rhuemotology to see if we can find out whats wrong with me. I am soo scared she wants me tested for
ra
ms
fibro
and lupus

anyone have any suggestions i need to find out what is going on

the more i research the more im leaning toward ms but not sure

any ideas or input greatly appreciated

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 8/5/2015 9:06 AM (GMT -6)   
Due to the fact that many of your symptoms "come and go as they please" leads me to think that you won't be diagnosed with MS. MS symptoms are caused by damage or lesions found in the brain and sometimes on the spinal cord. This damage tends to be permanent and therefor the symptoms are also permanent.

The symptoms I deal with do not come and go. I deal with them everyday 24/7. When I am tired or sick with a cold, overheated, then my symptoms can feel worse.

Joint swelling is not an MS symptom. I'm wondering if you have ever considered Lyme disease. Please post your symptoms there and see what responses you get. I'm not chasing you off. You are very welcome to ask any questions you may have here.

I'm sorry you have had such a rough time. Worse than that, I'm sorry you've not been taken seriously by at least one doctor! I hear this so often. It seems like when a doctor can't find what's wrong then depression is the "go-to" diagnosis. That's very unfair. I truly hope you find answers soon.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 8/5/2015 9:10 AM (GMT -6)   
By the way, a neurologist and not a rheumatologist would be needed to diagnose or rule out MS. It would be best if you found an MS specialist.

If after the neurologist does a thorough neurological exam he/she feels more testing is warranted then the typical tests are: an MRI of the brain and spine, a lumbar puncture, evoked potentials and blood work.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

angelboy08
New Member


Date Joined Aug 2015
Total Posts : 5
   Posted 8/5/2015 10:45 AM (GMT -6)   
All of the symptoms have been piling on over the years. I know a neurologist has to diagnose ms as I was a medical assistant but can't w work any longer due to compiling symptoms up and down and lengthy list of medication which includes some pretty strong opiates.they did find "cysts in my brain and hemogenic tumors " in my spine but no one has addressed or followed up. I have good days and bad days I did not word it right symptoms are always present just worse sometimes. On my dads side his aunt and his cousin both have MS. My symptoms have been compiling over the years the only way I know how to word it is its like my brain tells something to do something and it doesn't respond I am also concerned about the frequent falls I am just trying to get some insight on what I may be dealing with badoo doctor is the one that suggested rheumatology and neurology and when she realized that I was losing reflected MS was one of the first things she mentioned

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 8/5/2015 6:27 PM (GMT -6)   
Why has no one followed up on the brain cysts or spinal tumors? A doctor told you that you have these conditions and then nothing? Could these conditions be causing your symptoms?
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

angelboy08
New Member


Date Joined Aug 2015
Total Posts : 5
   Posted 8/5/2015 7:28 PM (GMT -6)   
I do believe that they are linked . The cysts were monitored when they first appeared but then I moved and noone e ever look back into it. The tumors were never even mentioned to me by a doctor I just found those on my updated MRI reports.

angelboy08
New Member


Date Joined Aug 2015
Total Posts : 5
   Posted 8/10/2015 11:33 AM (GMT -6)   
Ok I checked my medical record online and we have ordered Nerve conduction studies and I see the Ruemy tomorrow morning so we are headed in the right direction
The new dr also has the discs from my last mris so we will go from there I guess

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 8/16/2015 8:41 AM (GMT -6)   
Let us know how things are going when you get a chance.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.
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