Recently Diagnosed

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thatdudefromkansas
Regular Member


Date Joined Sep 2015
Total Posts : 36
   Posted 9/15/2015 10:17 PM (GMT -6)   
How's it going!

Just recently diagnosed. Taking gabapentin and Avonex.
The avonex sucks.

Diagnosed based on MRI findings in spine/brain, as well as lumbar puncture.

Just saying hi!


Side note: Ive been told how much more common MS is in women, and looking at this board and posters, it's interesting to note how true that is in this small, non-random sample, too.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 9/17/2015 5:42 PM (GMT -6)   
Hi Dude! Welcome to the board! I also see that you seem to have a Lyme diagnosis. What treatments for MS (if any) will you be doing?

I've heard its about 1/3 to 2/3 men to women for diagnosis. That's interesting. I've never heard a theory as to why that is.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

thatdudefromkansas
Regular Member


Date Joined Sep 2015
Total Posts : 36
   Posted 9/18/2015 11:49 AM (GMT -6)   
Well, right now, Avonex once a week.
 
Going from there.
 
I just started that this week.
 
It's a pretty nasty medication, though.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 9/18/2015 8:45 PM (GMT -6)   
What made you choose avonex? It's not so commonly used now days. Most people who choose to take it do so because they've been on it for a decade or more. Most newly diagnosed choose one of the sub q meds, or even one of the new oral meds.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

thatdudefromkansas
Regular Member


Date Joined Sep 2015
Total Posts : 36
   Posted 9/24/2015 8:35 AM (GMT -6)   
Neurologist prescribed it.

It may possibly be that he is familiar with it and wanted to start with it, ie. he has been working in the field for a long time.
I didn't select it.  He wanted to start with this before moving on to any other meds, and I may be ignorant, but from what I have read, the oral meds are generally moved to last, for whatever reason.
 
Are the other meds actually better, or just a more preferred method of administration?

Snoopy
Regular Member


Date Joined Sep 2015
Total Posts : 240
   Posted 9/24/2015 9:49 AM (GMT -6)   
Hi thatdudefromkansas,

Some Neurologists will prescribe a Disease Modifying Drug (DMD) based on their preference. Other Neurologists let the patient decide which one they prefer to try. The newer treatments are taken orally or by IV. They are supposed to be better but they also come with more serious side effects.
Diagnosed with Multiple Sclerosis in 1985

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1196
   Posted 9/29/2015 9:08 PM (GMT -6)   
Hey dude, why the gabapentin?
Pn ??
Anti convulsant ???
Clonus??
I asked my neuro about adding a anti convulsant.

gregg4536
New Member


Date Joined Jan 2016
Total Posts : 2
   Posted 1/13/2016 12:25 PM (GMT -6)   
new member here too..i have crohns and now MS..scared to death...seems every med I m put on has an ill effect on my body and ends up causing worse or added issues from the side effects...so depressed...so tired of one thing leading to another making life even more hellish than the desease itself..steroids led to avn and 6 hip surgeries..humara helped most but taken off it due to MS..lost 116 lbs so far and am always tired..always numb...always something...for now taking this one day at a time..battling the pain and wondering if life ever will be more...disabled..can hardly walk..wife left due to all the hospital stays ...tests and bad news...found myself on the streets but finally into a place I can barely afford..everyday is groundhog day...what a life...tired all the time and with 8 leasons on my brain and a huge one from my skull base to the middle of my back...whats the answer while my body delaminates into a slug trail...
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