I have been diagnosed with MS since 1989 after having a Bulls Eye Rash but a negative Lyme titer at that time. My diagnosis is based on demyelination plaques on my MRI. I have since received a positive LD result from Stony Brook and Ingenex labs as well as a spinal tap and was treated in 2006 with rocephen for 30 days.
My symptoms persist. I recently saw a Dr. at the New York Medical College Lyme Disease Center who follows the ID guidelines and totally discounts any history of LD. I have an appointment with a MS specialist next week in White Plains, NY but I have read that treating MS when it is really chronic or post-LD can be dangerous.
Are MS doctors familiar with symptoms of Lyme Disease?
I should add that my husband was also diagnosed with MS (coincidentally) and passed away in July from complications. He did have MS but I believe it may have started with LD and he had so many other unexplained symptoms.
My insurance will not cover a LLMD Internist because I have a PCP but will cover a special who is on my plan. Participating drs are mostly in lower to mid-Westchester County, NY.
If anyone knows of a neurologist in Westchester County, NY familiar with LD, please email me at firstname.lastname@example.org.