New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Mar 2014
Total Posts : 49
   Posted 12/4/2015 1:58 PM (GMT -6)   
Well, instead of the neuro switching me from Copaxone to Betaseron he wants me to take Gilenya. I can not swallow a pill--he is aware of this, but tells me it is a capsule & that I can break it apart. I have the 3 information books on Gilenya he gave says it is a 0.5 mg hard gelatin capsule. Is anyone taking this??? To me, it sounds like it is a sealed capsule & I don't see how I'm going to break it apart. He's already had me do the preliminary blood test & EKG...I go to the eye specialist Tuesday. Unless she nixes the idea because of my pars planitis in both eyes, it looks like it will be a go. ***Unless I can't break apart the capsule... anybody actually taking this capsule that could tell me?? Thanks!!!!!!!
Diagnosed with MS Feb 2014
Copaxone injections Mar 2014
Pars planitis both eyes Nov 2014

Veteran Member

Date Joined Sep 2014
Total Posts : 534
   Posted 12/6/2015 8:08 AM (GMT -6)   
Here is what others have to say about the drug. Look like you are going to gain some weight.

New Member

Date Joined Mar 2016
Total Posts : 1
   Posted 3/18/2016 10:14 PM (GMT -6)   
Gilenya capsules are about 3mm in diameter and 9-10mm in length. (Just eyeballing--I didn't get out a ruler.) As capsules go it's pretty small and not difficult to swallow. I didn't try to pull it apart so I can't tell you if it's possible.
Doctor prescribed for me because it's supposed to prevent additional lesions and keep things from getting worse. I only took it for a week because it did everything it was supposed to prevent.
Apparently some people have no side effects and think it's wonderful. I am one of the others--annoying flu symptoms, increased numbness, new stabbing pain on top of my foot. I thought my general distraction was due to the increase in numbness until I quit taking it and realized (after 36 hours) what a fog I had been in. The intermittent pain in my foot went away when I stopped and hasn't recurred. I decided that you could pay me to take it if there were enough 0s in the dollar amount, but only for 3 days--no longer.
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, March 24, 2018 11:26 PM (GMT -6)
There are a total of 2,943,616 posts in 322,970 threads.
View Active Threads

Who's Online
This forum has 161341 registered members. Please welcome our newest member, Hate this pain.
252 Guest(s), 5 Registered Member(s) are currently online.  Details
LifeCurves, astroman, Saipan Paradise, Memmem, BOB 46