My Daughter Just Diagnosed with MS

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Theresaxx1961
Regular Member


Date Joined May 2013
Total Posts : 78
   Posted 3/6/2016 4:31 PM (GMT -6)   
Hello,

My 26 year old daughter has just been diagnosed with MS from her MRI scan (multiple high signal foci in white matter also similar in spinal cord brain stem clear). Lumber Puncher test in a couple of weeks time.

It seems everyone's MS is different, but if anyone can give me some tips on what to expect for her future. I need to know how best to help her. any advice will be appreciated.
Thanks
Theresa

MW
New Member


Date Joined Oct 2015
Total Posts : 7
   Posted 3/7/2016 9:09 AM (GMT -6)   
Hi Theresa, The National MS Society has many resources for the newly diagnosed including information about what to expect following diagnosis. It might also help to google for questions to ask your doctor about MS and/or the spinal tap test since she is preparing for that soon.

Wishing you all the best.
-MW

Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 389
   Posted 3/7/2016 5:16 PM (GMT -6)   
Hi there. First words of advice. Stay cool, I mean temperature wise. Stay cool attitude wise too, but stay cool to minimize symptoms and fatigue.

Get plenty of exercise. It reduces the fatigue that I have no doubt she is feeling.

Stay positive. Maintaining positive mental health is the key!!

Have a great day,

Gary

Theresaxx1961
Regular Member


Date Joined May 2013
Total Posts : 78
   Posted 3/9/2016 1:41 AM (GMT -6)   
Thank you for your replies, I remain positive to help my daughter but have to admit I am scared for her future. At the moment we are taking one day at a time. Spinal tap on the 18th when they have the results a discussion with consultant regarding the medication. So hard to see your child having to deal with this illness. but it could have been worse news so we need to keep looking on the bright side.

Living_Healthy_in_TN
New Member


Date Joined May 2016
Total Posts : 2
   Posted 5/2/2016 12:00 PM (GMT -6)   
Hi Theresa. Progression of the disease is different for everyone. Obviously, you have begun your research, and are there for support for your daughter. That is awesome! My parents were there for me too when I was diagnosed at age 21.

I have since had a number of different exacerbations, none of which affected my ability to hold down a job or have a child. I find that I am like the majority of patients living with MS. I hope you daughter falls into this category too. I am now 47 and have been taking COPAXONE since 2012. While I don't like the idea of shots, it has been an effective treatment for me. I have an auto-injector and take the shots 3 times/week. I have not had any new symptoms, and have seen improvement in my MRIs. Research treatments available, possible side effects, and effectiveness. That part is hard.

I also found some great information in Minding Your Mitochondria by Terry Wahls. I think you will find her story and approach to healthy living inspirational for your daughter, even if you don't fully adopt the prescribed diet. I have modified my diet based on my reading, and attribute that to my improved energy and mental clarity.

I wish you and your daughter all the best.

- Heather

karenwritesalot
New Member


Date Joined Jun 2016
Total Posts : 1
   Posted 6/24/2016 6:54 PM (GMT -6)   
What are her symptoms? And what type of MS has she been diagnosed with? That will help you get more specific replies - or for me anyway. You're right - everyone is so different. Blessings! K
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, September 24, 2018 8:11 PM (GMT -6)
There are a total of 3,006,267 posts in 329,320 threads.
View Active Threads


Who's Online
This forum has 161825 registered members. Please welcome our newest member, TheRayf.
254 Guest(s), 12 Registered Member(s) are currently online.  Details
Youngguy90, JayMot, HeartsinPain, Bobbiesan, cashlessclay, A Yooper, Dewayne, Alxander, Traci, Fairwind, ddyss, halbert