My doctors are stumped and so am I......

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New Member

Date Joined May 2016
Total Posts : 1
   Posted 5/12/2016 12:35 PM (GMT -6)   
My nuerologist was almost certain that I had ms. I have had a numb, heavy, sometimes tingling feeling work its way from my toes to my shoulder on my left side. It's taken 1 year to progress to where I am now. I have to limit my physical activity and change my routines because the two limbs get so weak that I can hardly move them. I've lost almost all sensation to touch on that side as well sensitivity to temperatures. I have had a brain and cervical spine mri, a ct of my head, ncs, and emg. They all came back normal. My neurologist told me that he has ruled almost everything out and doesn't know what's causing my condition. He wants me to have another mri, but this time of my lumbar region. He's grasping at straws now. He said that he may have to refer me to a university hospital. When I asked him what to do when one day I can't move my arm or leg at all he told me to go the er.....that did not make me happy. At all! He has horrible bedside manner and now I'm just so lost because I keep getting worse. Has anyone had similar experiences or even just opinions of what I should do next or what in the world is wrong with me? I'm so frustrated and feel like no one is taking this seriously.

Post Edited (Court1101) : 5/12/2016 11:40:16 AM (GMT-6)

Veteran Member

Date Joined Sep 2014
Total Posts : 534
   Posted 5/13/2016 8:16 AM (GMT -6)   
Symptoms of MS can be caused by dental work. That was my problem. Fillings are made of mercury and mercury is a neurotoxin. You might get it checked out by a biological dentist. They have instruments that can check out the levels of mercury in your mouth.

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Date Joined Jan 2007
Total Posts : 3571
   Posted 5/16/2016 8:04 AM (GMT -6)   
I think it's time for a second opinion. Take all your records with you. Hopefully you have CD copies of your MRIs as well as the written reports that go with them. You may want to ask for a lumbar puncture as well as evoked potentials (vision, hearing and extremities). Can you possibly find a neurologist who specializes in MS? The MS Society can help.

You deserve answers whatever they are. Good luck!!
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.
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