Hi: I am usually on the fibromyalgia forum.
I was told about
13 years ago that I also have an unspecified neuro condition, despite undergoing much testing. My family doctor referred me to this neurologist, who was very highly recommended. But I ended up with pretty much a 'wait and see' diagnosis.
Well, fast forward to this year. For several months now, my stiffness has worsened. My feet and legs are extremely stiff when I wake up. I also really notice the stiffness if I'm on my feet a lot. Walking in a store is very difficult, unless there's soft carpeting!
I also have noticed more stiffness and sometimes "heaviness" throughout my body, even in my arms and somewhat in my hands, so I suspect something else is going on. My legs and feet, though, bear most of the burden. I have an appointment with a (new) neurologist coming up (the other neurologist is no longer in my area).
It's probably foolish for me to ask if this sounds like MS, but I guess I'll ask it anyway.
Back in 2003, the neurologist had ruled out MS and ALS, though I had similar symptoms of both. His best guess was that I might have cerebral palsy, and perhaps always had it.
I began to think about
how I was hospitalized and near death when I was 4 months old with the Asian flu. Family members did a prayer novena, and the doctor believed the prayers brought me through! I wonder if because I was so ill, this was the time my body started to act up? Perhaps this brought on the neuro condition(?) I don't know.
Anyway, I now take Neurontin and Flexeril. The Neurontin seems more helpful than the Flexeril, which only seems to make me very sleepy, though it helps a little.
I was bummed to go back on these medications, as my dentist says I have dry mouth, likely relating to my health. My doctor took a rheumatoid panel, but it came out okay. I suspect the meds are drying out my mouth and causing cavities. Biotene is on my shopping list!
Can someone recommend a good muscle relaxant? I'm sure it depends on each person, but in your opinion, is there a better or 'best' muscle relaxant? Hopefully with few side effects, but we all know those are hard to find!
I've tried more natural things like magnesium malate and valerian, but not a lot of success there.
I keep as active as possible, do lots of stretching and this time of year, I'm out in my garden working daily, though I do get tired! I try to pace myself.
Trying not to stress about
the 'what if's' which are so useless, but any advice appreciated! Just trying to keep moving and thinking positively and of course, continuing to pray.
Thanks for any thoughts.
"Start by doing what's necessary; then do what's possible; and suddenly, you are doing the impossible."
St. Francis of Assisi
Post Edited (Luvzminis) : 6/30/2016 6:56:56 AM (GMT-6)