Diagnosed with MS in Jan 2016

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healthymindandsoul
New Member


Date Joined Jul 2016
Total Posts : 3
   Posted 7/12/2016 5:45 AM (GMT -6)   
Hi,

I come from India and its extremely rare for people to catch MS here as we have plenty of sun here.

So I will try to keep this short. In June 2015 I got Jaundice, got admitted in hospital here. After a week's time I came home. Very weak. Eventually I lost 20 kgs of weight and no doctor could find a reason why. all tests were normal. I tried very good diet from June till FEB. Less oily food and everything.

By now I was a regular hospital visitor for various tests. I knew where to go for what. In Jan 2016 I suddenly started having mild stiffness in my left palm and fingers. Gripping the fist was a pain. I ignored it for a week or so. Picking the wallet out of my pocket became tough. Then I thought I will show it to the Ortho doc. I was redirected to a Neuro.

The neuro straight away ordered EMG, Never tests and Brain MRI. He said nothing will be there so dont worry. But darn.. those 5 lesions changed my life since January. My doc ordered a lot of blood tests to rule out eveything else and in the end he was confirmed that it is MS. He said that Lumber Puncture is not needed as he is sure that its MS.

Put me on rebif twice a week. and gave me Vitamins supplements ( D and Calcium)

Then for second opinion I saw another doctor who has a bigger reputation. He also said it looks like MS. He put me on Avonex once a week and lots of medicines.

Now the hand stiffness in left hand comes and goes. but some weird feeling has shifted to right hand. I cannt call it weakness but its a feeling in my right hand sometimes that something internally is stopping it to move. It definitely scares me a lot. Feels like I will be paralyzed or something. But after 3 or 4 hours of torture it goes away. I rarely have PINS and NEEDLES feeling. Noticing little change in speech though.

Once in a month, I will also feel heavyness in my legs and a similar feeling in limbs where I feel that, that's it, its not going to work now. Also I have this weird streatchy and tightness feeling along my Nerves. There was a breif period of time where I could feel this feeling on my face and I would freak out thinking of it as a stroke. But neuro ruled stoke out.

So many symptoms. My neuro says I am okay and all the above are not symptoms of Progressing MS.
Just wanted to know, anyone feeling anything like me? as they says all have different symptoms in MS.

Also, Since its a new diagnosis, I am very scared that I may need a wheel chair or a support sometime in future. Do you guys think that everyone with MS ends up on a wheelchair?

Following the Swank Diet, but no noticeable difference in symptoms. Yoga and Pranayaam helps me to keep symptoms like back pain and Depression away.

Still I am worried. :)

I am 27 year old Male. :)

Post Edited (healthymindandsoul) : 7/12/2016 5:53:20 AM (GMT-6)


Snoopy
Regular Member


Date Joined Sep 2015
Total Posts : 243
   Posted 7/13/2016 3:35 PM (GMT -6)   
healthymindandsoul said...
Also, Since its a new diagnosis, I am very scared that I may need a wheel chair or a support sometime in future. Do you guys think that everyone with MS ends up on a wheelchair?


Hi, sorry you received a diagnosis of MS.

There are some that need a wheelchair but not everyone. Exercise is your friend. Just take it slow and be careful not to over do it.
Diagnosed with Multiple Sclerosis in 1985
PTSD diagnosed Feb 2004 (PTSD since age 2), Anxiety/Panic attacks secondary to PTSD.

eat2bwell
Veteran Member


Date Joined Sep 2014
Total Posts : 534
   Posted 7/13/2016 4:04 PM (GMT -6)   
Did your doctor test your vitamin D level before putting you on a vitamin D supplement? If not how does he know how much you need? Vitamin D3 is preferred over vitamin D2. Drugs have side effects so keep track of any unusual symptoms you might experience when you take a drug. Let your doctor know if you have any strange symptoms when taking the drugs. Not everyone ends up in a wheelchair and Dr. Swank had good results with his diet.
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