Posted 8/8/2016 3:28 AM (GMT -7)
I had an MRI done in December 2015, got the results in the following January, and got a lumbar puncture because of the MRI results done a little while after that. The results of the lumbar puncture as I understand it were inconclusive, as the certain proteins that for certain indicate MS weren't present, but there was an indication that I had an episode of MS, but I wasn't having one at the time the test was performed. So I was okay with the "it's most likely MS but it's not full blown MS just yet/right now" diagnosis that I got then, but more symptoms kept popping up after that, even when I went in to get the results which was a while after the test because of scheduling and insurance issues and I was put on a med to try to curb the new symptoms that popped up since the test. Since then, I had to stop that med because of the side effects of it but even more symptoms keep showing, taking it away from "probably MS but not full blown just yet" to "yeah it's definitely MS and it's all here". It was easier to deal with when it was just a little double vision, a little bit of worsening of my visual snow, temperature sensitivity, muscle spasms every now and then, and tingling in my feet sometimes. Now it's worsened visual snow, muscle spasms that are in multiple spots every night and sometimes during the day, tingling in my feet and hands and sometimes in my face if it's a really stressful day, my memory is getting particularly crapty, pain in general is worse, part of my hand went numb when I had a really stressful day when I had family in the hospital which was the first time I had something go numb on me, pretty much all the stuff from before is just to a worse degree with some new stuff thrown in. Most of the time it's just irritating because I can compare it to a few months ago and before that when it wasn't as bad, but sometimes it just sucks because it's just there and you can't ignore it if you tried. I am starting on one of the meds for MS (one of the ones available as a pill) in September when I have my next appointment with my neuro, though I do need to see how ridiculously expensive it is going to be with the insurance I have because everything seems to be that, to see how much that helps, but I do have this one last semester of college to get through so hopefully this stuff gives me a break. If anyone has any advice on how to deal with/get used to new symptoms, especially for someone who is recently diagnosed, I'd appreciate it.