Recently diagnosed, new symptoms keep popping up

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charlie_14
New Member


Date Joined Dec 2015
Total Posts : 11
   Posted 8/8/2016 4:28 AM (GMT -6)   
I had an MRI done in December 2015, got the results in the following January, and got a lumbar puncture because of the MRI results done a little while after that. The results of the lumbar puncture as I understand it were inconclusive, as the certain proteins that for certain indicate MS weren't present, but there was an indication that I had an episode of MS, but I wasn't having one at the time the test was performed. So I was okay with the "it's most likely MS but it's not full blown MS just yet/right now" diagnosis that I got then, but more symptoms kept popping up after that, even when I went in to get the results which was a while after the test because of scheduling and insurance issues and I was put on a med to try to curb the new symptoms that popped up since the test. Since then, I had to stop that med because of the side effects of it but even more symptoms keep showing, taking it away from "probably MS but not full blown just yet" to "yeah it's definitely MS and it's all here". It was easier to deal with when it was just a little double vision, a little bit of worsening of my visual snow, temperature sensitivity, muscle spasms every now and then, and tingling in my feet sometimes. Now it's worsened visual snow, muscle spasms that are in multiple spots every night and sometimes during the day, tingling in my feet and hands and sometimes in my face if it's a really stressful day, my memory is getting particularly crapty, pain in general is worse, part of my hand went numb when I had a really stressful day when I had family in the hospital which was the first time I had something go numb on me, pretty much all the stuff from before is just to a worse degree with some new stuff thrown in. Most of the time it's just irritating because I can compare it to a few months ago and before that when it wasn't as bad, but sometimes it just sucks because it's just there and you can't ignore it if you tried. I am starting on one of the meds for MS (one of the ones available as a pill) in September when I have my next appointment with my neuro, though I do need to see how ridiculously expensive it is going to be with the insurance I have because everything seems to be that, to see how much that helps, but I do have this one last semester of college to get through so hopefully this stuff gives me a break. If anyone has any advice on how to deal with/get used to new symptoms, especially for someone who is recently diagnosed, I'd appreciate it.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3555
   Posted 8/11/2016 11:33 AM (GMT -6)   
Hi Charlie,

If you're dealing with symptoms that are affecting daily life, get your doctor to send you to PT. Some symptoms can be minimized with medication. If you think stress is a factor, then do what you can to manage your stress. A therapist or counselor can also be very helpful. Best of luck to you. Keep us posted.

Why the long wait to start medication?
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

charlie_14
New Member


Date Joined Dec 2015
Total Posts : 11
   Posted 8/14/2016 7:38 PM (GMT -6)   
The wait to start medication was from the long time between appointments with my neuro that were caused with problems with insurance and switching insurances and not having it for a while and also having a while between appointments because of trying to schedule around school. I think my neuro wanted to wait a little bit until it was more definitive, I was on a med he prescribed for a little bit that's not strictly for ms, but that wait was drawn out more because of all of that.
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