What to ask about Rehab?

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Date Joined Jan 2017
Total Posts : 65
   Posted 2/15/2017 4:19 PM (GMT -6)   

A little background:

My son-n-law was diagnosed with MS when he was 18. At age 30 he went on disability. He's now 36. He was on Tysabri for several years. Shephards Clinic in Atlanta was just starting to work with him (they told him to stop taking the Tysabri in early November) but they haven't been able to get his insurance company to approve the new drug (sorry I don't remember what it is).

Two weeks ago his symptoms got much worse. One leg stopped working, and he started to have a hard time using his walker. Within days he lost all his strength, complete fatigue and unable to use the bathroom or really feed himself. He was hospitalized last Friday. On Monday, they started to suspect PML and sent off some spinal fluid to test for JA virus dna. He continues to get worse, today he can only speak a few words, can't sit up, can't keep his head up, but he can follow conversations just not join them. He whispers and points with his finger or gives a thumb up or down. This morning he can't even hold a cup of liquid or his phone.

The Insurance company wants him to go to rehab but my daughter, his parents, and myself don't even know what questions to ask when selecting inpatient rehab. Does anyone have any advice on what we can expect as we go forward or what questions to ask?

And in case my signature posts, my husband was diagnosed with prostrate cancer in December which is how I found this web site. When it rains it pours!!

Thanks in advance!

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Date Joined Jan 2007
Total Posts : 3571
   Posted 2/16/2017 11:49 PM (GMT -6)   
I'm so sorry to hear all this! You should ask to speak to the hospital's utilization review office. They should be able to help you find a place that suits your son-in-law's needs.

Ask about patient to nurse numbers, patient to PT therapist numbers, are rooms private, security of patient property and what specific PT interventions will be attempted.

Best of luck to you and your family. I hope your husband is quickly and successfully treated for his cancer.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.
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